Online Communities as a Driver for Patient Empowerment: Systematic Review.
Online Communities as a Driver for Patient Empowerment: Systematic Review.
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DOI：
10.2196/19910
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发表时间：
2021-02-09
影响因子：
7.4
通讯作者：
Gellerstedt M
中科院分区：
文献类型：
--
作者：
Johansson V;Islind AS;Lindroth T;Angenete E;Gellerstedt M
在线资源的使用改变了人们管理医疗保健流程的方式。患者在网上寻求有关健康状况的信息、治疗指导和同行的支持，这是对传统医疗保健轨迹的补充。在线社区有可能通过增加患者赋权来提高护理质量；然而，关于在线社区如何为患者赋权做出贡献的研究存在差距。我们综合了关于在线社区如何为患者赋权做出贡献的研究，以解决研究问题：参与在线社区可以以哪些方式支持患者赋权？通过研究患者赋权在不同研究中的可操作性。本文中使用的患者赋权的定义是使人们能够掌握影响他们生活的行动和决定。掌握是通过发展的过程和结果来实现的。通过检索Scope us、ACM数字图书馆、EBSCO(CINAHL和MEDLINE)、PubMed和Web of Science等数据库进行系统评价。在排除重复后，总共有1187篇论文，通过使用患者赋权和相关概念的定义的分析框架进行选择，纳入了33篇同行评议的论文。研究结果表明，在线社区支持将患者赋权作为一个过程和这些过程的结果。此外，它被视为对传统医疗保健的补充，并鼓励卫生保健专业人员对患者的使用持更积极的态度。在研究不同形式的患者赋权方面，有演绎(19/33，58%)、归纳(11/33，33%)和混合方法(3/33，9%)的混合方法。大多数论文中的在线社区(21/33，%)是成熟的，代表了患者的主动性。有必要包括专业人士关于医疗保健如何通过在线社区支持患者赋权的观点。这项系统审查的主要贡献是提出了一个新的框架，并对如何从不同的等级层次理解在线社区中的患者赋权进行了概念化。
The use of online resources has changed how people manage health care processes. Patients seek information about health conditions, guidance in treatment, and support from peers online, complementary to traditional health care trajectories. Online communities have the potential to contribute to the quality of care by increasing patient empowerment; however, there is a gap in research regarding in what way online communities contribute to patient empowerment. We synthesized research regarding how online communities contribute to patient empowerment to address the research question “In what ways can participation in online communities support patient empowerment?” by studying how patient empowerment is operationalized in different studies. The definition of patient empowerment used in this paper is enablement for people to develop mastery over actions and control over decisions that influence their lives. The mastery is both through processes and outcomes of the development. A systematic review was conducted by searching in the following databases: Scopus, ACM Digital Library, EBSCO (CINAHL and MEDLINE), PubMed, and Web of Science. In total, there were 1187 papers after excluding duplicates, and through selection processes using an analytical framework with definitions of patient empowerment and related concepts, 33 peer-reviewed papers were included. Findings indicated that online communities support patient empowerment both as a process and as outcomes of these processes. Additionally, it was seen as a complement to traditional health care and encouragement for health care professionals to have a more positive attitude toward patients’ usage. There was a mix between deductive (19/33, 58%), inductive (11/33, 33%), and a mixed approach (3/33, 9%) of studying patient empowerment in various forms. The online communities in most papers (21/33, 64%) were well-established and represented patients’ initiatives. There is a need to include professionals' perspectives regarding how health care can embrace patient empowerment through online communities. This systematic review's main contribution is the proposal of a new framework and conceptualization of how patient empowerment in online communities can be understood from different hierarchical levels.
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