Co-production to understand online help-seeking for young people experiencing emotional abuse and neglect: Building capabilities, adapting research methodology and evaluating involvement and impact.
Co-production to understand online help-seeking for young people experiencing emotional abuse and neglect: Building capabilities, adapting research methodology and evaluating involvement and impact.
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DOI：
10.1111/hex.13622
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发表时间：
2022-12
影响因子：
3.2
通讯作者：
Singh, Ilina
中科院分区：
文献类型：
--
作者：
Bennett, Vanessa;Gill, Chloe;Miller, Pam;Wood, Asher;Bennett, Cassia;Ypag, NeurOX;Singh, Ilina
由于伦理和认识论的原因，让年轻人(YP)作为联合研究员(YCoR)参与心理健康研究是很重要的。然而，在复杂的定性心理健康研究中涉及和评估“有意义的参与”的方法，以及如何评估对合作研究人员和研究的影响(或变化)，定义较少。这项联合制作的研究探索了YP通过在线同行留言板寻求帮助解决情感虐待和忽视的经历。这一实际案例研究旨在证明YCoR使用灵活的联合制作方法参与敏感和复杂的心理健康研究的有意义的作用和影响。在新冠肺炎疫情期间，我们探索了线上和线下方法，并调整了研究方法，以建立与YCoR的关系、知识、技能和信心。根据联合制作的五项原则对虚拟参与进行了评估。使用匿名、持续的数字反馈、反思做法和多重传播产出来评估研究对参与者和研究的影响。NeuroX年轻人咨询小组的10名成员参与了核心项目。在后期阶段和在分发产出方面邀请了更多的成员。我们描述了一种支持性的脚手架学习方法来建设能力，并将YCoR的现场经验嵌入到复杂的定性研究中。YCoR可以接受数字混合方法，满足了联合制作的原则，并描述了参与的影响/好处。为了证明参与YP的认识论价值，我们通过反思性实践证明YPS的参与能力以及YCoR对研究的‘改变’或贡献。这个案例研究展示了与YCoR联合制作的灵活方法如何能够稳健和反应地平衡复杂的心理健康研究中的伦理和认识论影响。支持性的脚手架做法和安全的环境有助于建立YCoRs的信心和能力，以在分析中展示有价值的现象学见解。YP对如何描述“有意义的”和有影响力的参与的观点说明了通过合作获得的互惠利益。本案例研究描述了青年研究中心在研究和传播产出的整个过程中的参与情况。YCoR的共同作者参与了提纲的制定和手稿草稿阶段的审查。
Involving young people (YP) as co‐researchers (YCoR) in mental health research is important for ethical and epistemological reasons. However, approaches to involve and evaluate ‘meaningful involvement’ in complex qualitative mental health research, and how to evaluate impacts (or change) for the co‐researcher and the research is less well defined. This co‐produced research explored the experiences of YP seeking help for emotional abuse and neglect via an online, peer‐peer message board. This practical case study aims to evidence the meaningful role and impacts associated with YCoR involvement in sensitive and complex mental health research using a flexible approach to co‐production. During the Covid‐19 pandemic, we explored on‐ and off‐line approaches and adapted research methodology to build relationships, knowledge, skills, and confidence with YCoR. The virtual involvement was evaluated against the five principles of co‐production. Anonymous, continuous digital feedback, reflective practices and multiple dissemination outputs are used to evaluate the impact of the study on those involved and the research. Ten members of NeurOX Young People's Advisory Group were involved in the core project. Additional members were invited at later stages and in the dissemination of outputs. We describe a supportive, scaffolded learning approach to build capabilities and embed the lived experience of YCoR in complex qualitative research. A digital blended approach was acceptable to YCoR, principles of co‐production were met and the impact/benefits of involvement are described. To demonstrate the epistemological value of involving YP we evidence YPs capabilities for involvement and the ‘change’ or contribution YCoR made to the research through reflective practices. This case study demonstrates how flexible approaches co‐production with YCoR can be robust and responsive to balance ethical and epistemological impact in complex mental health research. Supportive, scaffolded practices and safe environments helped build the confidence and capacity of YCoRs to demonstrate valuable phenomenological insights in the analysis. YP's perspectives on how they describe ‘meaningful’ and impactful involvement illustrate the reciprocal benefits gained through working together. This case study describes the YCoR involvement throughout the research and dissemination of outputs. YCoR co‐authors were involved in developing the outline and reviewing the draft stages of the manuscript.
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DOI：
10.1111/hex.13088
发表时间：
2021-05
期刊：
Health expectations : an international journal of public participation in health care and health policy
影响因子：
--
作者：
Dewa LH;Lawrence-Jones A;Crandell C;Jaques J;Pickles K;Lavelle M;Pappa S;Aylin P
通讯作者：
Aylin P
影响因子：
3.3
作者：
Mawn, Lauren;Welsh, Patrick;Windebank, Phoebe
通讯作者：
Windebank, Phoebe
影响因子：
1.8
作者：
Morrow, Phillip R.
通讯作者：
Morrow, Phillip R.
影响因子：
1.4
作者：
MacSweeney, Niamh;Bowman, Sarah;Kelly, Clare
通讯作者：
Kelly, Clare
影响因子：
3.2
作者：
Boylan, Anne-Marie;Locock, Louise;Staniszewska, Sophie
通讯作者：
Staniszewska, Sophie