Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study.
Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study.
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DOI：
10.1155/2021/6660337
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发表时间：
2021
影响因子：
1.7
通讯作者：
Nyeko R
中科院分区：
文献类型：
--
作者：
Mujjuzi I;Mutegeki P;Nabuwufu S;Wosukira A;Namata F;Alayo P;Amanya SB;Nyeko R
家庭照料者为感染艾滋病毒的儿童提供大部分照料。这给照顾者带来了巨大的需求和照顾负担，他们往往难以以各种方式科普，其中一些可能是适应不良的。这可能会影响他们的护理质量。在资源有限的情况下，关于感染艾滋病毒/艾滋病的儿童长期护理所依赖的照顾者所承受的护理负担的文献很少。我们评估了乌干达北方里拉区儿童艾滋病患者的照顾者的照顾负担和应对策略。 在乌干达北方里拉区一家三级医疗机构的113名艾滋病儿童的护理人员中进行了一项混合方法横断面研究。定量研究采用连续抽样方法，定性研究采用有目的抽样方法，共抽取15名受访者。定量数据收集使用标准的访谈管理的问卷，而深入访谈指南被用来收集定性数据。使用SPSS 23版输入、清理和分析数据。定性数据按主题进行分析。 大多数照顾者，65.5%（74），经历了轻度至中度的负担。照顾者的年龄（P=0.017），婚姻状况（P = 0.017），平均月收入（P=0.035），和孩子的入学率（P=0.039）的平均负担得分显着不同。接受社会支持、寻求精神支持和重构是三种最常用的应对策略。婚姻状况和职业分别与信息寻求作为应对策略呈正相关和负相关，而月收入与心理社会支持作为应对策略呈正相关。寻求社区支持与儿童护理的持续时间呈负相关。 我们的研究结果表明，照顾负担是一个共同的问题之间的照顾者的艾滋病毒感染儿童的研究背景。
Family caregivers provide the bulk of care to children living with HIV. This places an enormous demand and care burden on the caregivers who often struggle to cope in various ways, some of which may be maladaptive. This may adversely affect their quality of care. Very little literature exists in resource-limited contexts on the burden of care experienced by caregivers on whom children living with HIV/AIDS depend for their long-term care. We assessed care burden and coping strategies among the caregivers of paediatric HIV/AIDS patients in Lira district, northern Uganda. A mixed-method cross-sectional study was conducted among 113 caregivers of paediatric HIV patients attending the ART clinic at a tertiary healthcare facility in Lira district, northern Uganda. A consecutive sampling method was used to select participants for the quantitative study, while 15 respondents were purposively sampled for the qualitative data. Quantitative data were collected using standard interviewer-administered questionnaires, while in-depth interview guides were used to collect qualitative data. Data were entered, cleaned, and analysed using SPSS version 23. Qualitative data were analysed thematically. The majority of the caregivers, 65.5% (74), experienced mild-to-moderate burden. The mean burden scores significantly differed by caregivers' age (P=0.017), marital status (P=0.017), average monthly income (P=0.035), and child's school attendance (P=0.039). Accepting social support, seeking spiritual support, and reframing were the three most commonly used strategies for coping. Marital status and occupation were, respectively, positively and negatively correlated with information-seeking as a coping strategy, while monthly income was positively correlated with psychosocial support as a strategy. Seeking community support was negatively correlated with the duration of the child's care. Our findings show that care burden is a common problem among the caregivers of children living with HIV in the study context.
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影响因子：
1.9
作者：
Eaton PM;Davis BL;Hammond PV;Condon EH;McGee ZT
通讯作者：
McGee ZT
影响因子：
2.4
作者：
Dada MU;Okewole NO;Ogun OC;Bello-Mojeed MA
通讯作者：
Bello-Mojeed MA
小组心理教育计划对精神障碍患者家庭护理人员负担的有效性。
影响因子：
1.8
作者：
Navidian A;Kermansaravi F;Rigi SN
通讯作者：
Rigi SN
DOI：
10.1080/09540121.2010.542123
发表时间：
2011-01-01
影响因子：
1.7
作者：
Demmer, Craig
通讯作者：
Demmer, Craig
影响因子：
2.1
作者：
Kipp, Walter;Tindyebwa, Denis;Rubaale, Tom
通讯作者：
Rubaale, Tom