Exploring family management of childhood brain tumor survivors.
Exploring family management of childhood brain tumor survivors.
复制标题
DOI：
10.1177/1043454209343210
复制
发表时间：
2009-09
期刊：
影响因子：
--
通讯作者：
Mooney-Doyle K
中科院分区：
文献类型：
--
作者：
Deatrick JA;Mullaney EK;Mooney-Doyle K
儿童慢性疾病的家庭管理包括6个家庭因素：(1)家庭对儿童日常生活的看法，(2)疾病对家庭生活的影响，(3)家庭生活的困难程度，(4)家庭管理儿童疾病的努力程度，(5)家庭管理儿童疾病的能力，(6)父母的相互关系。最近，衡量慢性疾病（癌症除外）儿童的家庭管理情况的“家庭管理对策”（FaMM）得到了验证。本描述性研究的目的是检验这6个因素在儿童脑肿瘤幸存者家庭中的可比性。首先，14名神经肿瘤学和幸存者专家的高级执业护士将FaMM上的项目评为与脑肿瘤幸存者家庭相关且清晰的。其次，对22名脑肿瘤幸存者父母的认知访谈描述了家庭管理与患有其他慢性疾病儿童家庭的可比性。在本报告中，两个假设的、对比的家庭管理案例研究被用来说明在脑肿瘤幸存者的背景下的家庭管理。
Family management of childhood chronic conditions consists of 6 family factors: (1) the family’s view of the child’s daily life, (2) the impact of the condition on family life, (3) the difficulty of family life, (4) the family’s effort managing the child’s condition, (5) the family’s ability managing the child’s condition, and (6) parental mutuality. Recently, the Family Management Measure (FaMM), which measures family management of children with chronic conditions (excluding cancer), was validated. The purpose of this descriptive study was to examine the comparability of these 6 factors in families with childhood brain tumor survivors. First, 14 advanced practice nurses who are experts in neuro-oncology and survivorship rated items on the FaMM as relevant and clear to families of brain tumor survivors. Second, 22 cognitive interviews with parents of brain tumor survivors described family management as comparable with families of children with other chronic illness. In this report, 2 hypothetical, contrasting case studies of family management are used to illustrate family management within the context of brain tumor survivors.
登录
查看更多内容
影响因子：
3.6
作者：
Langeveld, NE;Grootenhuis, MA;Van Den Bos, C
通讯作者：
Van Den Bos, C
影响因子：
6.2
作者：
Mitby, PA;Robison, LL;Mertens, AC
通讯作者：
Mertens, AC
DOI：
10.1016/s0882-5963(97)80045-0
发表时间：
1997-10-01
期刊：
Journal of pediatric nursing
影响因子：
--
作者：
Clarke-Steffen, L
通讯作者：
Clarke-Steffen, L
影响因子：
3.1
作者：
Knafl K;Deatrick JA;Gallo AM
通讯作者：
Gallo AM
影响因子：
158.5
作者：
Oeffinger, Kevin C.;Mertens, Ann C.;Robison, Leslie L.
通讯作者：
Robison, Leslie L.