Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme.
Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme.
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DOI：
10.1093/scipol/scv075
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发表时间：
2016-10
影响因子：
2.7
通讯作者：
Pagliari C
中科院分区：
文献类型：
--
作者：
Aitken M;Cunningham-Burley S;Pagliari C
苏格兰卫生信息学方案（SHIP）是一个全苏格兰范围的研究方案，探索收集、管理和分析电子病历的方法，以供卫生研究之用。作为SHIP公众参与工作流程的一部分，进行了一系列的八个焦点小组和一个利益相关者研讨会，以探讨与研究实践有关的信任（或可信度）的作用，相关性和功能的看法。调查结果表明，公众对科学和研究的信任和/或不信任关系并不简单。本文旨在超越公众是否信任研究人员的简单描述，或在公众的信任，并更充分地探讨公众信任/不信任科学的基础，信任意味着什么，同样意味着什么研究/研究人员是值得信赖的。这对公众参与跨学科项目具有重要意义。
The Scottish Health Informatics Programme (SHIP) was a Scotland-wide research programme exploring ways of collecting, managing and analysing electronic patient records for health research. As part of the SHIP public engagement work stream, a series of eight focus groups and a stakeholder workshop were conducted to explore perceptions of the role, relevance and functions of trust (or trustworthiness) in relation to research practices. The findings demonstrate that the public’s relationships of trust and/or mistrust in science and research are not straightforward. This paper aims to move beyond simple descriptions of whether publics trust researchers, or in whom members of the public place their trust, and to explore more fully the bases of public trust/mistrust in science, what trust implies and equally what it means for research/researchers to be trustworthy. This has important implications for public engagement in interdisciplinary projects.
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