Brain-Computer interfaces for communication: preferences of individuals with locked-in syndrome, caregivers and researchers.
Brain-Computer interfaces for communication: preferences of individuals with locked-in syndrome, caregivers and researchers.
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DOI：
10.1080/17483107.2021.1958932
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发表时间：
2023-08
影响因子：
2.2
通讯作者：
Vansteensel, Mariska J.
中科院分区：
文献类型：
--
作者：
Branco, Mariana P.;Pels, Elmar G. M.;Nijboer, Femke;Ramsey, Nick F.;Vansteensel, Mariska J.
关键词：
用于恢复严重运动障碍患者的沟通（cBCIs）的脑机接口的开发理想地依赖于最终用户和其他利益相关者（例如护理人员和研究人员）之间的密切合作。一般来说，了解这些群体之间潜在的意见差异对于开发可用的 cBCI 和接入技术 (AT) 至关重要。在这项研究中，我们比较了潜在的 cBCI 用户、他们的护理人员和 cBCI 研究人员的意见：1）用户希望使用 cBCI 控制哪些应用程序； 2）用户更喜欢使用什么心理策略来进行 cBCI 控制； 3) 用户希望在其临床轨迹的哪个阶段了解 AT 和 cBCIs。我们收集了 28 名闭锁综合症患者、29 名他们的护理人员和 28 名 cBCI 研究人员的数据。该问卷配有动画视频来解释不同的 cBCI 概念，并评估了其实用性。三组人在最理想的 cBCI 应用方面意见一致，但在心理策略和了解 cBCI 的时间方面存在分歧。动画视频被认为是向最终用户和其他利益相关者解释 cBCIs 和心理策略的清晰且有用的工具。对于用户喜欢使用哪些心理策略以及何时希望了解 cBCIs，利益相关者之间存在明显的分歧。为了推进 cBCIs 的开发和临床实施，有必要使研究议程与最终用户和护理人员的需求保持一致。
The development of Brain-Computer Interfaces to restore communication (cBCIs) in people with severe motor impairment ideally relies on a close collaboration between end-users and other stakeholders, such as caregivers and researchers. Awareness about potential differences in opinion between these groups is crucial for development of usable cBCIs and access technology (AT) in general. In this study, we compared the opinions of prospective cBCI users, their caregivers and cBCI researchers regarding: 1) what applications would users like to control with a cBCI; 2) what mental strategies would users prefer to use for cBCI control; and 3) at what stage of their clinical trajectory would users like to be informed about AT and cBCIs. We collected data from 28 individuals with locked-in syndrome, 29 of their caregivers and 28 cBCI researchers. The questionnaire was supported with animation videos to explain different cBCI concepts, the utility of which was also assessed. Opinions of the three groups were aligned with respect to the most desired cBCI applications, but diverged regarding mental strategies and timing of being informed about cBCIs. Animation videos were regarded as clear and useful tools to explain cBCIs and mental strategies to end-users and other stakeholders. Disagreements were clear between stakeholders regarding which mental strategies users prefer to use and when they would like to be informed about cBCIs. To move forward in the development and clinical implementation of cBCIs, it will be necessary to align the research agendas with the needs of the end-users and caregivers.
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DOI：
10.3109/17483107.2014.900574
发表时间：
2014-01-01
影响因子：
2.2
作者：
Johnston, Patricia;Currie, Leanne M.;Jongbloed, Lyn
通讯作者：
Jongbloed, Lyn
DOI：
10.1111/j.1749-6632.2008.04122.x
发表时间：
2009-01-01
期刊：
DISORDERS OF CONSCIOUSNESS
影响因子：
--
作者：
Kuebler, Andrea;Furdea, Adrian;Kotchoubey, Boris
通讯作者：
Kotchoubey, Boris
影响因子：
3
作者：
Pires, Gabriel;Nunes, Urbano;Castelo-Branco, Miguel
通讯作者：
Castelo-Branco, Miguel
影响因子：
0.8
作者：
Ahmed, Einas;Alike, Queen;Keselman, Alla
通讯作者：
Keselman, Alla
影响因子：
9.9
作者：
Kübler, A;Nijboer, F;Wolpaw, JR
通讯作者：
Wolpaw, JR