Information needs of informal caregivers in caring and rehabilitation for dioxin victims in Vietnam.

Information needs of informal caregivers in caring and rehabilitation for dioxin victims in Vietnam.
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DOI:
10.1186/s12889-023-15095-y
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发表时间:
2023-07-24
期刊:
影响因子:
4.5
通讯作者:
--
中科院分区:
医学2区
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--
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橙子剂/二恶英(二恶英)受害者的健康结果很重要,因为许多人需要日常援助、非正式护理和康复支持。本研究旨在确定在越南的二恶英受害者的非正式照顾者的信息需求。2019年6月至2020年6月,在太平省Quynh Phu县进行了一项横断面研究,该地区有大量二恶英受害者。通过结构化访谈,从124名受害者的照顾者那里收集了定量数据。使用半结构化访谈指南、深度访谈(IDI)(n = 36)和两次焦点小组讨论(FGD)(n = 12)收集定性数据。结果表明,二恶英受害者的所有照顾者都是家庭成员,主要是老年人(71.8%),平均年龄为61.5岁,低收入(87.9%),农民(80.7%)。几乎所有的参与者(96.8%)报告有信息需求,特别是关于二恶英的危害,营养,二恶英相关的政策和康复,以及对病人的心理支持。护理人员报告说,他们希望通过卫生工作人员咨询(85.0%),电视(75.0%)和社区扬声器(65.8%)获得信息。值得注意的是,大多数照顾者报告需要有关心理支持的信息(70.0%)。这些发现与定性数据一致,定性数据确定迫切需要提供信息,特别是通过卫生工作人员和数字资源提供信息。许多有二恶英受害者的家庭生活得不到任何支助和信息,突出表明他们对有关护理和康复的信息的需求很高。因此,卫生保健系统应促进对照顾者和受害者的信息支持、政策和心理支持。还建议为照顾者和受害者建立一个在线支助系统。
Health outcomes among Agent Orange/dioxin (dioxin) victims are significant due to many individuals requiring daily assistance, informal care, and rehabilitation support. This study aimed to identify the information needs of informal caregivers of dioxin victims in Vietnam. A cross-sectional study was conducted in Quynh Phu district, Thai Binh province – an area with a large number of dioxin victims, from June 2019 to June 2020. Quantitative data were collected from 124 caregivers of victims via structured interviews. Qualitative data were collected using semi-structured interview guides with in-depth interviews (IDI) (n = 36) and two focus group discussions (FGD) (n = 12). The results demonstrated that all caregivers of dioxin victims were family members, predominantly older (71.8%), 61.5 years old on average, living on low incomes (87.9%), and were farmers (80.7%). Almost all participants (96.8%) reported having information needs, particularly concerning dioxin’s harms, nutrition, dioxin-related policies and rehabilitation, and psychological support for patients. Caregivers reported that they would like to receive information via health staff counselling (85.0%), television (75.0%), and community loudspeaker (65.8%). Notably, the majority of caregivers reported the need for information regarding psychological support (70.0%). These findings are consistent with qualitative data, which identify an urgent need to provide information, especially through health staff and digital resources. Many families with dioxin victims lived with little support and information, highlighting their high demand for information about care and rehabilitation. Thus, the healthcare system should promote information support, policy, and psychological support for caregivers and victims. An online support system for caregivers and victims is also recommended.
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