Retaining Adolescent and Young Adult Participants in Research During a Pandemic: Best Practices From Two Large-Scale Developmental Neuroimaging Studies (NCANDA and ABCD).

Retaining Adolescent and Young Adult Participants in Research During a Pandemic: Best Practices From Two Large-Scale Developmental Neuroimaging Studies (NCANDA and ABCD).
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DOI:
10.3389/fnbeh.2020.597902
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发表时间:
2020
影响因子:
3
通讯作者:
Cottler L
Cottler L
中科院分区:
医学3区
文献类型:
--
作者:
Nooner KB;Chung T;Feldstein Ewing SW;Brumback T;Arwood Z;Tapert SF;Brown SA;Cottler L

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2019年底出现的新型冠状病毒大流行(COVID-19)带来了人类研究从未经历过的挑战。本文讨论了两个大规模的NIH资助的青少年和年轻人的多站点纵向研究-全国酒精和青少年神经发育联盟(NCANDA)和青少年大脑认知发育(ABCD)研究-和有价值的方法来了解适应过程进行发展敏感的研究与神经成像和神经认知测试在全球大流行期间跨联盟。我们专注于疫情期间经历的挑战和可能指导其他项目的修改,例如实施保护参与者和研究人员安全的适应性协议,以及通过使用远程和移动的评估等策略应对评估挑战。鉴于大流行对参与者的不成比例的影响,通常在研究中代表性不足,我们描述了留住这些人的努力。这一流行病提供了一个机会,可以发展适应性进程,促进未来研究有效和迅速动员的能力。
The novel coronavirus pandemic that emerged in late 2019 (COVID-19) has created challenges not previously experienced in human research. This paper discusses two large-scale NIH-funded multi-site longitudinal studies of adolescents and young adults – the National Consortium on Alcohol and Neurodevelopment in Adolescence (NCANDA) and the Adolescent Brain Cognitive Development (ABCD) Study – and valuable approaches to learn about adaptive processes for conducting developmentally sensitive research with neuroimaging and neurocognitive testing across consortia during a global pandemic. We focus on challenges experienced during the pandemic and modifications that may guide other projects, such as implementing adapted protocols that protect the safety of participants and research staff, and addressing assessment challenges through the use of strategies such as remote and mobile assessments. Given the pandemic’s disproportionate impacts on participants typically underrepresented in research, we describe efforts to retain these individuals. The pandemic provides an opportunity to develop adaptive processes that can facilitate future studies’ ability to mobilize effectively and rapidly.
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