Engaging African American family Caregivers in Developing a Culturally-responsive Interview Guide: A Multiphase Process and Approach.
Engaging African American family Caregivers in Developing a Culturally-responsive Interview Guide: A Multiphase Process and Approach.
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DOI：
10.1016/j.jpainsymman.2022.02.331
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发表时间：
2022-06
影响因子：
4.7
通讯作者：
Dionne-Odom, J. Nicholas
中科院分区：
文献类型：
--
作者：
Gazaway, Shena;Bakitas, Marie A.;Elk, Ronit;Eneanya, Nwamaka D.;Dionne-Odom, J. Nicholas
从质量上引出历史上被边缘化的人口的信仰、价值观和偏好，对于获取真实描述其经历的信息至关重要，并可用于制定文化上敏感的干预措施。要获得这些丰富的观点，研究人员需要有高效的定性访谈指南，这可以通过社区参与来优化。然而，研究人员几乎没有方法论指导社区成员参与如何帮助面试指南的发展。本文的目的是提供一系列步骤，每个步骤都有一个案例支持，这些案例来自我们与非裔美国人家庭护理人员的合作，通过社区参与制定采访指南。最后，我们强调如何参与历史上被边缘化的社区成员在这些早期阶段的研究研究发展可以建立信任，研究伙伴关系，并承认他们的贡献，新知识的发展。
Qualitatively eliciting historically marginalized populations’ beliefs, values, and preferences is critical to capturing information that authentically characterizes their experiences and can be used to develop culturally-responsive interventions. Eliciting these rich perspectives requires researchers to have highly effective qualitative interviewing guides, which can be optimized through community engagement. However, researchers have had little methodological guidance on how community member engagement can aid development of interview guides. The purpose of this article is to provide a series of steps, each supported by a case example from our work with African American family caregivers, for developing an interview guide through community engagement. We conclude by highlighting how involving historically marginalized community members in these early stages of research study development can build trust, research partnerships, and acknowledge their contribution to the development of new knowledge.
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