Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study.

Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study.
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DOI:
10.1186/s12955-014-0175-3
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发表时间:
2014-12-09
影响因子:
3.6
通讯作者:
Woods RT
Woods RT
中科院分区:
医学3区
文献类型:
--
作者:
Clare L;Quinn C;Hoare Z;Whitaker R;Woods RT

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很少有人知道非常严重的痴呆症患者在长期护理环境中的生活质量,需要更多的信息,针对这一群体的生活质量的措施的属性。在这项研究中,我们探讨了档案的生活质量通过代理评级的护理人员和家庭成员使用生活质量在晚期痴呆症(QUID)规模,检查与这些评级的因素,并进一步调查的QUID的心理测量特性。代理评级的生活质量使用的EPOMID获得了105名居民非常严重的痴呆症,分类为满足标准的功能评估分期(FAST)阶段6或7,从护理人员(n = 105)和家庭成员(n = 73)。还评估了一系列居民和工作人员因素。护理人员和家庭成员的评分相似,但与不同的因素有关。护理人员的评级显着预测居民的情绪和意识/反应。抗精神病药物的使用可以显着预测家庭成员的评分。因子分析的CRYPID分数提出了一个两个因素的解决方案,护理人员的评级和家庭成员的评级。研究结果提供了新的证据,护理人员的生活质量的代理评级的预测,并表明,共同评估的居民变量解释家庭成员的代理评级的变异性很小。研究结果提供了进一步的信息,心理测量学特性的BROMID,并支持的适用性BROMID作为一种手段,检查生活质量在非常严重的痴呆症。
Little is known about the quality of life of people with very severe dementia in long-term care settings, and more information is needed about the properties of quality of life measures aimed at this group. In this study we explored the profiles of quality of life generated through proxy ratings by care staff and family members using the Quality of Life in Late-stage Dementia (QUALID) scale, examined factors associated with these ratings, and further investigated the psychometric properties of the QUALID. Proxy ratings of quality of life using the QUALID were obtained for 105 residents with very severe dementia, categorised as meeting criteria for Functional Assessment Staging (FAST) stages 6 or 7, from members of care staff (n = 105) and family members (n = 73). A range of resident and staff factors were also assessed. Care staff and family member ratings were similar but were associated with different factors. Care staff ratings were significantly predicted by resident mood and awareness/responsiveness. Family member ratings were significantly predicted by use of antipsychotic medication. Factor analysis of QUALID scores suggested a two-factor solution for both care staff ratings and family member ratings. The findings offer novel evidence about predictors of care staff proxy ratings of quality of life and demonstrate that commonly-assessed resident variables explain little of the variability in family members’ proxy ratings. The findings provide further information about the psychometric properties of the QUALID, and support the applicability of the QUALID as a means of examining quality of life in very severe dementia.
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