Ethical issues in participatory arts methods for young people with adverse childhood experiences.

Ethical issues in participatory arts methods for young people with adverse childhood experiences.
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DOI:
10.1111/hex.13314
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发表时间:
2021-10
期刊:
Health expectations : an international journal of public participation in health care and health policy
影响因子:
--
通讯作者:
Bhui K
Bhui K
中科院分区:
其他
文献类型:
--
作者:
Pavarini G;Smith LM;Shaughnessy N;Mankee-Williams A;Thirumalai JK;Russell N;Bhui K

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越来越多地使用以参与艺术为基础的方法,如照片之声、戏剧和音乐,让面临心理社会风险的年轻人参与进来。这些方法有可能增强青年的能力,并为他们提供一个易于接触和欢迎的环境,以表达和管理困难的感受和经历。然而,这些影响取决于这些方法的实施方式以及如何处理潜在的伦理问题。本文以当前以艺术为基础的健康研究文献为基础,对有创伤经历的年轻人采用参与式艺术方法所产生的伦理问题进行了研究。我们提出了一种类型,涵盖权力、可获得性、沟通、信任和所有权等相关问题,涉及伙伴关系工作、项目进入、参与和传播等领域。根据我们广泛的临床和研究经验,现有的研究和新的实践例子,我们为研究的不同阶段可能出现的伦理困境提供指导。对道德问题的充分预期和考虑,加上年轻人的参与,将有助于确保在年轻人的研究和实践中以公平、有意义的方式和赋权的方式实施艺术方法。审查的问题在很大程度上是基于作者进行参与性研究的经验。提到的每个项目都有自己的PPI系统,包括与咨询小组的磋商、联合制作、青年大使和导师计划。其中一位合著者Josita Kavitha Thirumalai是一位接受过同伴支持培训的年轻人,她在所有阶段都提供了广泛的投入。
Participatory arts‐based methods such as photovoice, drama and music have increasingly been used to engage young people who are exposed to psychosocial risks. These methods have the potential to empower youth and provide them with an accessible and welcoming environment to express and manage difficult feelings and experiences. These effects are, however, dependent on the way these methods are implemented and how potential ethical concerns are handled. Using the current literature on arts‐based health research as a foundation, this paper examines ethical issues emerging from participatory arts methods with young people with traumatic experiences. We present a typology covering relevant issues such as power, accessibility, communication, trust and ownership, across the domains of partnership working, project entry, participation and dissemination. Drawing on our extensive clinical and research experiences, existing research and novel in‐practice examples, we offer guidance for ethical dilemmas that might arise at different phases of research. Adequate anticipation and consideration of ethical issues, together with the involvement of young people, will help ensure that arts methods are implemented in research and practice with young people in a fair, meaningful and empowering way. The issues reviewed are largely based on the authors' experience conducting participatory research. Each of the projects referenced has its own systems for PPI including, variously, consultations with advisory groups, coproduction, youth ambassadors and mentor schemes. One of the coauthors, Josita Kavitha Thirumalai, is a young person trained in peer support and has provided extensive input across all stages.
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