Feasibility and Acceptability of a mHealth Self-Management Intervention for Pediatric Transplant Families.

Feasibility and Acceptability of a mHealth Self-Management Intervention for Pediatric Transplant Families.
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儿科移植家庭移动医疗自我管理干预的可行性和可接受性。

DOI:
10.1177/01939459211024656
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发表时间:
2022-10
影响因子:
1.8
通讯作者:
Simpson P
Simpson P
中科院分区:
医学4区
文献类型:
--
作者:
Lerret SM;Schiffman R;White-Traut R;Medoff-Cooper B;Ahamed SI;Adib R;Liegl M;Alonso E;Mavis A;Jensen K;Peterson CG;Neighbors K;Riordan MK;Semp MC;Vo T;Stendahl G;Chapman S;Unteutsch R;Simpson P

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儿童实体器官移植受者的家庭在出院后的前30天需要持续的教育和支持。本报告的目的是描述移动健康家庭自我管理干预(myFAMI)的可行性、可接受性和初步疗效,旨在改善出院后的应对结果、家庭生活质量、自我效能、家庭自我管理和医疗资源的利用。我们招募了46个主要家庭成员。myFAMI是可行和可接受的;81% (n=17/21)的家庭成员至少在24/30天内完成了应用程序(目标完成率为80%)。家庭成员产生134个触发警报,并在99%的时间内(< 2小时)收到护士回复。虽然两组之间没有显著差异,但主要结果与预期的方向一致。该干预措施效果良好,对于接受器官移植的儿童家庭未来的出院后干预是可行的。
Families of pediatric solid organ transplant recipients need ongoing education and support in the first 30 days following hospital discharge for the transplantation. The purpose of this report is to describe the feasibility, acceptability, and preliminary efficacy of a mHealth family-self management intervention, (myFAMI), designed to improve post-discharge outcomes of coping, family quality of life, self-efficacy, family self-management, and utilization of healthcare resources. We enrolled 46 primary family members. myFAMI was feasible and acceptable; 81% (n=17/21) of family members completed the app at least 24/30 days (goal 80% completion rate). Family members generated 134 trigger alerts and received a nurse response within the goal timeframe of < 2 hours 99% of the time. Although there were no significant differences between groups, primary outcomes were in the expected direction. The intervention was well received and is feasible for future post-discharge interventions for families of children who receive an organ transplant.
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