When Dementia is in the House: Needs Assessment Survey for Young Caregivers
When Dementia is in the House: Needs Assessment Survey for Young Caregivers
复制标题
当痴呆症在家中时：年轻护理人员的需求评估调查
DOI：
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复制
发表时间：
2013
期刊：
影响因子：
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通讯作者：
T. Chow
中科院分区：
文献类型：
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作者：
Katherine Nichols;David J Fam;Cheryl Cook;Michelle J. Pearce;Gail E. Elliot;Sylvia Baago;K. Rockwood;T. Chow
摘要：目的：了解年轻照顾者对额颞叶失智症病人的需要和经验，以建立一个相关的网站，为年轻照顾者提供对痴呆症病人的支持。方法：两个焦点小组举行了14个年轻的照顾者，年龄在11-18岁。通过半结构化访谈收集数据库，访谈由一名医学记者主持，该记者之前曾担任FTD患者的护理人员。这些成绩单被缩小到一个数据集，用于使用编码方案进行描述性分析，以揭示他们回答的主题。结果如下：七个重叠的主题领域是：与患有FTD的父母生活在一起的情感影响，治疗，应对，症状，诊断，关系和支持。根据参与者的答复，启动了一个网站，为年轻的照顾者提供支持性信息和咨询。结论：年轻的照顾者认为照顾早发性痴呆症父母的经历总体上是积极的，但确定了专业人员帮助他们克服耻辱感的机会以及在这种情况下平衡儿童和青少年发展的挑战。
Abstract: Objective: To learn more about the needs and experiences of young carers for patients of frontotemporal dementia (FTD) in order to create a relevant support website for young caregivers to dementia patients. Methods: Two focus groups were held with a total of fourteen young carers aged 11-18. The data corpus was collected through a semi-structured interview facilitated by a medical journalist who had prior experience as a caregiver to a patient with FTD. The transcripts were narrowed to a dataset for descriptive analysis using a coding scheme to reveal the main themes of their responses. Results: Seven overlapping theme areas were: emotional impact of living with a parent with FTD, caregiving, coping, symptoms, diagnosis, relationships, and support. Based on the participants' responses, a website was launched providing supportive information and counsel for young carers. Conclusion: Young carers saw the experience of caring for a parent with early-onset dementia as positive overall, but identified opportunities for professionals to assist them in overcoming stigma and the challenge of balancing childhood and adolescent development within this context.
影响因子：
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作者：
Chow TW;Binns MA;Cummings JL;Lam I;Black SE;Miller BL;Freedman M;Stuss DT;van Reekum R
通讯作者：
van Reekum R
亲子化对父母患有艾滋病毒/艾滋病的儿童的长期结局的影响。
影响因子：
3.9
作者：
Stein,JudithA;Rotheram-Borus,MaryJane;Lester,Patricia
通讯作者：
Lester,Patricia