Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany.
Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany.
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DOI：
10.1186/s12913-021-06359-7
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发表时间：
2021-04-16
影响因子：
2.8
通讯作者：
Gellert P
中科院分区：
文献类型：
--
作者：
Budnick A;Hering C;Eggert S;Teubner C;Suhr R;Kuhlmey A;Gellert P
虽然非正式照护者参与照护与照护者负担之间的关系众所周知，但尚未对COVID-19大流行期间与参与照护相关的额外心理社会负担进行调查。从2020年4月21日至5月2日，共有1000名线下招募的非正式护理人员参加了一项横断面在线调查。采用问卷调查的方式评估护理情况的COVID-19特异性变化、护理情况的负面情绪、COVID-19措施的实施问题、担忧/过度要求、失去支持、非正式护理人员自身参与护理的变化以及COVID-19信息的提供、理解和实用性问题，并将这些问题与护理参与的五个指标（即作为主要护理人员、高时间支出、高质量服务和高质量服务）联系起来。高水平的护理，痴呆，没有专业帮助)。采用二项式和多元回归分析。在护理参与指标中，25.5-39.7%的人报告说，在COVID-19大流行期间，护理情况相当恶化或严重恶化，特别是那些照顾痴呆症患者或通常依赖专业帮助的人。在多元回归模型中，平均参与指标数与年龄相关（β = 0.18; CI = 0.10 -）。25)，过度需求(β =。10, ci .00 -。19)， COVID-19措施实施中的问题(β =。11, ci .04 -。19)，非正式照料者自身照料的增加(β =。14, ci .03 -。24)，而照顾的数量没有变化(β =。18, ci .07 -。29)和支撑损失(β =−。08, ci - 0.16 - 0.00)。性别、受教育程度、护理情况的改变、负面情绪以及COVID-19信息的提供、理解和实用性与平均参与指标没有显著关联。那些认为护理负担沉重的护理人员是大流行期间遭受最大痛苦的人，他们呼吁卫生保健系统现在和将来提供结构性支持。本文不报告对人类参与者进行卫生保健干预的结果。
While the relation between care involvement of informal caregivers and caregiver burden is well-known, the additional psychosocial burden related to care involvement during the COVID-19 pandemic has not yet been investigated. A total of 1000 informal caregivers, recruited offline, participated in a cross-sectional online survey from April 21 to May 2, 2020. Questionnaires were used to assess COVID-19-specific changes in the care situation, negative feelings in the care situation, problems with implementation of COVID-19 measures, concerns/excessive demands, loss of support, change in informal caregivers’ own involvement in care and problems with provision, comprehension & practicability of COVID-19 information, and to relate these issues to five indicators of care involvement (i.e., being the main caregiver, high expenditure of time, high level of care, dementia, no professional help). Binomial and multiple regression analyses were applied. Across indicators of care involvement, 25.5–39.7% reported that the care situation rather or greatly worsened during the COVID-19 pandemic, especially for those caring for someone with dementia or those usually relying on professional help. In a multiple regression model, the mean number of involvement indicators met was associated with age (β = .18; CI .10–.25), excessive demands (β = .10, CI .00–.19), problems with implementation of COVID-19 measures (β = .11, CI .04–.19), an increase in caregiving by the informal caregivers themselves (β = .14, CI .03–.24) as well as with no change in the amount of caregiving (β = .18, CI .07–.29) and loss of support (β = −.08, CI −.16–.00). No significant associations with the mean number of involvement indicators met were found for gender, educational level, change in the care situation, negative feelings, and provision, comprehension & practicability of COVID-19 information. Those caregivers who perceived extensive care burden were those who suffered most during the pandemic, calling for structural support by the healthcare system now and in the future. This article does not report the results of a health care intervention on human participants.
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DOI：
10.1093/geronb/gbaa129
发表时间：
2021-03-14
期刊：
The journals of gerontology. Series B, Psychological sciences and social sciences
影响因子：
--
作者：
Savla J;Roberto KA;Blieszner R;McCann BR;Hoyt E;Knight AL
通讯作者：
Knight AL
DOI：
10.3390/ijerph17176237
发表时间：
2020-08-27
影响因子：
--
作者：
Ammar A;Chtourou H;Boukhris O;Trabelsi K;Masmoudi L;Brach M;Bouaziz B;Bentlage E;How D;Ahmed M;Mueller P;Mueller N;Hsouna H;Aloui A;Hammouda O;Paineiras-Domingos LL;Braakman-Jansen A;Wrede C;Bastoni S;Pernambuco CS;Mataruna L;Taheri M;Irandoust K;Khacharem A;Bragazzi NL;Strahler J;Washif JA;Andreeva A;Khoshnami SC;Samara E;Zisi V;Sankar P;Ahmed WN;Romdhani M;Delhey J;Bailey SJ;Bott NT;Gargouri F;Chaari L;Batatia H;Ali GM;Abdelkarim O;Jarraya M;Abed KE;Souissi N;Gemert-Pijnen LV;Riemann BL;Riemann L;Moalla W;Gómez-Raja J;Epstein M;Sanderman R;Schulz S;Jerg A;Al-Horani R;Mansi T;Jmail M;Barbosa F;Ferreira-Santos F;Šimunič B;Pišot R;Pišot S;Gaggioli A;Zmijewski P;Apfelbacher C;Steinacker J;Saad HB;Glenn JM;Chamari K;Driss T;Hoekelmann A;On Behalf Of The Eclb-Covid Consortium
通讯作者：
On Behalf Of The Eclb-Covid Consortium
影响因子：
3.4
作者：
Giebel, Clarissa;Cannon, Jacqueline;Gabbay, Mark
通讯作者：
Gabbay, Mark
影响因子：
4
作者：
Giebel C;Lord K;Cooper C;Shenton J;Cannon J;Pulford D;Shaw L;Gaughan A;Tetlow H;Butchard S;Limbert S;Callaghan S;Whittington R;Rogers C;Komuravelli A;Rajagopal M;Eley R;Watkins C;Downs M;Reilly S;Ward K;Corcoran R;Bennett K;Gabbay M
通讯作者：
Gabbay M
影响因子：
7
作者：
Giebel, Clarissa;Cations, Monica;Komuravelli, Aravind
通讯作者：
Komuravelli, Aravind