Internet use and eHealth literacy of low-income parents whose children have special health care needs.
Internet use and eHealth literacy of low-income parents whose children have special health care needs.
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低收入父母的互联网使用和eHealth素养，他们的孩子有特殊的医疗保健需求。
DOI：
10.2196/jmir.1697
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发表时间：
2011-09-29
影响因子：
7.4
通讯作者：
Shenkman E
中科院分区：
文献类型：
--
作者：
Knapp C;Madden V;Wang H;Sloyer P;Shenkman E
互联网彻底改变了许多美国人搜索医疗保健信息的方式。不幸的是，能够为此目的使用互联网的前提是能够访问互联网并能够了解和理解在线健康信息。这对于有特殊医疗需求的儿童的父母尤其重要，他们在孩子的一生中被迫做出许多医疗决定。然而，没有关于这一弱势群体的信息。对于有特殊医疗需求的儿童的父母，我们试图（1）描述他们的互联网接入和使用，（2）确定哪些儿童和家庭因素与互联网使用相关，（3）描述互联网用户的电子健康素养，（4）确定哪些儿童和家庭因素与更高的电子健康素养相关。这是一个横截面的电话调查的2371名父母的孩子有特殊的医疗保健需求，参加了佛罗里达的医疗补助和国家儿童健康保险计划（SCHIP）计划（4072父母接触）。要参加该计划，家庭收入必须低于或等于联邦贫困线的200%。电子健康素养量表（eHEALS）被用来衡量电子健康素养。进行了描述性和多变量分析，以解决研究目的。调查回应率为58.2%。参与的父母主要是女性（2154/2371，91%），非西班牙裔白色人（915/2371，39%），讲英语（1827/2371，77%），高中毕业生（721/2371，30%），已婚（1252/2371，53%）和生活在双亲家庭（1212/2371，51%）。此外，样本中82%的父母（1945/2371）报告说他们使用互联网，其中49%的父母每天使用互联网（1158/2371）。近四分之三的互联网用户在家中上网，约一半的人在工作场所上网。非裔美国人、不讲英语、年龄较大、没有大学毕业的父母使用互联网的可能性低于他们的参照组（P <0.001）。大约74%的互联网用户（1448/1945）报告说，他们知道如何为他们的孩子找到健康信息。然而，只有大约一半（1030/1945）的人报告说，他们可以区分高质量和低质量的在线资源，或者他们对使用在线访问的信息做出健康决策感到有信心。多变量回归结果一致显示，作为一个非英语发言者，具有不到高中教育，年龄较大都与较低的电子健康素养显着相关（所有P < .001）。有特殊保健需要的儿童的低收入父母可以访问和使用互联网，作为了解其子女健康的信息来源。但是，有些家长无法区分高质量和低质量的信息，对使用互联网没有信心。这一信息是及时的，因为随着利用互联网增强消费者能力和交流信息的压力增加，必须更好地了解与获取和差距有关的问题。
The Internet has revolutionized the way in which many Americans search for health care information. Unfortunately, being able to use the Internet for this purpose is predicated on having access to the Internet and being able to understand and comprehend online health information. This is especially important for parents of children with special health care needs who are forced to make many medical decisions throughout the lives of their children. Yet, no information is available about this vulnerable group. For parents of children with special health care needs we sought to (1) describe their Internet access and use, (2) determine which child and household factors were associated with Internet use, (3) describe eHealth literacy of Internet users, and (4) determine which child and household factors were associated with greater eHealth literacy. This was a cross-sectional telephone survey of 2371 parents whose children with special health care needs were enrolled in Florida’s Medicaid and State Children’s Health Insurance Plan (SCHIP) programs (4072 parents were approached). To be enrolled in the program, families must have incomes that are less than or equal to 200% of the federal poverty level. The eHealth Literacy Scale (eHEALS) was used to measure eHealth literacy. Descriptive and multivariate analyses were conducted to address the study objectives. The survey response rate was 58.2%. Participating parents were mainly female (2154/2371, 91%), white non-Hispanic (915/2371, 39%), English speaking (1827/2371, 77%), high school graduates (721/2371, 30%), married (1252/2371, 53%), and living in a two-parent household (1212/2371, 51%). Additionally, 82% of parents (1945/2371) in the sample reported that they used the Internet, and 49% of those parents used it daily (1158/2371). Almost three-quarters of Internet users had access to the Internet at home while about one-half had access at work. Parents who were African American, non-English speaking, older, and not college graduates were less likely to use the Internet than their referent groups (P < .001). About 74% of Internet users (1448/1945) reported that they knew how to find health information for their children. However, only about one-half (1030/1945) reported that they can tell high quality from low quality resources online or that they feel confident in using information accessed online to make health decisions. Multivariate regression results consistently showed that being a non-English speaker, having less than a high school education, and being older were all significantly associated with lower eHealth literacy (all P < .001). Low-income parents of children with special health care needs have access to and use the Internet as a source of information about their children's health. However, some parents are unable to distinguish between high and low quality information and are not confident in using the Internet. This information is timely because as the pressure to use the Internet to empower consumers and exchange information increases, issues related to access and disparities must be better understood.
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