Citizen Consultation on Problematic Usage of the Internet: Ethical Considerations and Empirical Insights From Six Countries.

Citizen Consultation on Problematic Usage of the Internet: Ethical Considerations and Empirical Insights From Six Countries.
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DOI:
10.3389/fpubh.2021.587459
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发表时间:
2021
影响因子:
5.2
通讯作者:
Sales CMD
Sales CMD
中科院分区:
医学3区
文献类型:
--
作者:
Gjoneska B;Jones J;Vella AM;Bonanno P;Flora K;Fontalba-Navas A;Hall N;Ignjatova L;Kirtava Z;Moreno Sanjuán D;Vaz-Rebelo MP;Sales CMD

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公民和科学家可以共同努力,改善集体福祉,如果公民受到鼓舞,帮助科学进步,研究人员有动力倾听公民的声音。公民和科学家越来越认识到这种合作的好处,相关出版物和倡议越来越多地反映了这一点。这对于新兴的研究领域尤其重要,在这些领域,公民的早期参与可以帮助设想、确定优先顺序和规划前瞻性研究。互联网的问题使用(PUI)就是这样一个领域,它正在迅速成为一个公共心理健康问题。然而,对于公民参与的最早阶段的实际指导方针和道德要求,仍然缺乏明确性。在我们的论文中,我们提出了一个概念框架和一个模板,用于公民在PUI中的初始参与。它们源于我们在六个欧洲国家(格鲁吉亚、希腊、马耳他、北马其顿、葡萄牙和西班牙)进行的社区案例研究,并与不同的感兴趣的公民群体(学生、家长、教师和卫生专业人员)进行了磋商。根据我们的咨询工作,我们还强调了公民参与PPI或新学科研究的四个道德方面。他们遵循简单的指导原则,以确保科学家将:为公民提供长期承诺和包容性机会,挑战既定的权力等级,支持与公民合作、联合制作和共同撰写。我们相信,拟议的实用指导方针和道德考虑因素提供了一个宝贵的基础,可以在此基础上增进我们的理解,并为公民参与PPI制定国际战略。
Citizens and scientists can work together to improve the collective well-being, if citizens are inspired to help the advancement of science, and researchers motivated to listen to the voices of citizens. The benefits of such collaboration are increasingly recognized by both citizens and scientists, as reflected in the growing number of related publications and initiatives. This is especially relevant for emerging areas of research, where early involvement of citizens could help to envision, prioritize, and plan prospective studies. The Problematic Usage of the Internet (PUI) is one such area, which is fast becoming a public mental health concern. However, there remains a lack of clarity regarding the practical guidelines and ethical requirements for citizen involvement at the earliest stages of PUI. In our paper, we propose a conceptual framework and a template for initial involvement of citizens in PUI. They are derived from our community case studies, conducted in six European countries (Georgia, Greece, Malta, North Macedonia, Portugal, and Spain) and consisting of consultation with diverse groups of interested citizens (students, parents, teachers, and health professionals). Informed by our consultation exercises, we also highlight four ethical aspects for citizen involvement in the research on PUI or novel disciplines in general. They follow simple guiding principles to ensure that scientists will: enable a long-term commitment and inclusive opportunities for citizens, challenge established power hierarchies, and support collaboration, co-production and co-authorship with citizens. We believe that the proposed practical guidelines and ethical considerations, provide a valuable foundation on which to advance our understanding and generate international strategies for citizen involvement in PUI.
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