Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: a randomized controlled trial.
Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: a randomized controlled trial.
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DOI：
10.2337/dc08-0394
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发表时间：
2008-08
期刊：
影响因子：
16.2
通讯作者：
Snoek FJ
中科院分区：
文献类型：
--
作者：
de Wit M;Delemarre-van de Waal HA;Bokma JA;Haasnoot K;Houdijk MC;Gemke RJ;Snoek FJ
目的：在一项多中心随机对照试验中检测和讨论1型糖尿病青少年健康相关生活质量（HRQoL）的效果。研究设计和方法-四个中心被随机分配到HRQoL干预组（46名青少年）或对照组（45名青少年），两组均在12个月内安排三次定期访视。在HRQoL干预组中，使用儿科生活质量量表评估青少年的HRQoL，并在咨询期间面对面讨论结果。对照组照常接受护理。在控制基线评分的情况下，测定12个月时两组间身体和心理健康（儿童健康问卷[CHQ]-CF 87/PF 50、糖尿病特异性家庭冲突量表和流行病学研究中心抑郁量表）、护理满意度（患者对糖尿病护理质量的评价）和A1 C的平均差异。HRQoL干预组的CHQ心理社会健康（P < 0.001）、行为（P <0.001）、心理健康（P < 0.001）和家庭活动（P < 0.001）子量表的平均得分均有所改善，但A1 C值最高的青少年除外。HRQoL干预组的青少年在随访时报告了更高的自尊（CHQ）（P = 0.016），无论A1 C如何，并且比对照组对护理更满意（P = 0.009）。随着时间的推移，两组之间的A1 C水平没有显着差异。结论：定期监测和讨论糖尿病青少年的健康相关生活质量是值得赞赏的，对他们的心理健康有积极的影响，除了那些控制最差的。
OBJECTIVE—To test the effects of monitoring and discussing of health-related quality of life (HRQoL) in adolescents with type 1 diabetes in a multicenter randomized controlled trial. RESEARCH DESIGN AND METHODS—Four centers were randomly assigned to the HRQoL intervention (46 adolescents) or control (45 adolescents) group, with three regular visits scheduled within 12 months in both groups. In the HRQoL intervention group, HRQoL of adolescents was assessed using the Pediatric Quality of Life Inventory, and outcomes were discussed face-to-face during the consultation. The control group received care as usual. Mean differences between the groups at 12 months in physical and psychosocial well-being (Child Health Questionnaire [CHQ]-CF87/PF50, Diabetes-Specific Family Conflict Scale, and Center for Epidemiological Studies Scale for Depression), satisfaction with care (Patients’ Evaluation of the Quality of Diabetes Care), and A1C were determined, controlling for baseline scores. RESULTS—Mean scores on the CHQ subscales of psychosocial health (P < 0.001), behavior (P < 0.001), mental health (P < 0.001), and family activities (P < 0.001) improved in the HRQoL intervention group, except for adolescents with the highest A1C values. Adolescents in the HRQoL intervention group reported higher self-esteem (CHQ) at follow-up (P = 0.016), regardless of A1C, and were more satisfied with care (P = 0.009) than control subjects. No significant differences between the two groups over time were observed in A1C levels. CONCLUSIONS—Periodic monitoring and discussion of HRQoL in adolescents with diabetes is appreciated and has positive effects on their psychosocial well-being, except for those in poorest control.
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影响因子：
16.2
作者：
Laffel, LMB;Connell, A;Anderson, BJ
通讯作者：
Anderson, BJ
影响因子：
3
作者：
Varni, JW;Seid, M;Kurtin, PS
通讯作者：
Kurtin, PS
影响因子：
8
作者：
Lawrence, JM;Standiford, DA;McKeown, RE
通讯作者：
McKeown, RE
影响因子：
120.7
作者：
Detmar, SB;Muller, MJ;Aaronson, NK
通讯作者：
Aaronson, NK
影响因子：
3.6
作者：
de Wit, Maartje;Delemarre-van de Waal, Henriette A.;Snoek, Frank J.
通讯作者：
Snoek, Frank J.