The Immigrant Memory Collaborative: A Community-University Partnership to Assess African Immigrant Families' Experiences with Dementia.
The Immigrant Memory Collaborative: A Community-University Partnership to Assess African Immigrant Families' Experiences with Dementia.
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移民记忆协作：社区大学合作评估非洲移民家庭痴呆症的经验。
DOI：
10.3390/ijerph19074075
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发表时间：
2022-03-29
影响因子：
--
通讯作者：
Gaugler JE
中科院分区：
文献类型：
--
作者：
Nkimbeng M;Rosebush CE;Akosah KO;Yam H;Russell WN;Bustamante G;Albers EA;Shippee TP;Sasikumar AP;Gaugler JE
研究表明，痴呆症的患病率存在差异，黑人老年人的风险是白色人的两倍。非洲移民是美国黑人人口中快速增长的一部分，但这一人群的痴呆症护理需求和资源尚未得到充分了解。在本文中，我们描述了与社区合作伙伴和项目咨询委员会合作开展文化知情项目的过程。具体而言，我们描述了开发文化知情的工具，收集数据的痴呆症护理需求和资源的非洲移民的过程。与一个多样化的项目咨询委员会合作，制定了一份指南，用于就痴呆症/记忆丧失的经历进行社区对话。来自六个对话的24个参与者的转录本由两个独立的编码器在Nvivo中转录和分析。这些定性调查结果被用于为目前正在进行的定量数据收集调查的制定提供信息。主题（例如，文化态度、挑战和现有资源），并简要介绍了为调查提供信息的社区对话。尽管在全球大流行期间开展研究面临挑战，但与合作社区组织和项目咨询委员会建立信任关系有助于成功开发工具，以便在服务不足的人群中进行初步的痴呆症护理研究。我们预计，调查结果将为干预措施提供信息，增加教育，推广和获得痴呆症护理，并为这一人群提供资源。它可以作为社区-大学合作伙伴关系的典范，用于痴呆症和其他慢性病背景下的类似公共卫生工作。
Research suggests a disparity in the prevalence of dementia, with Black older adults having double the risk compared to their White counterparts. African immigrants are a fast-growing segment of the U.S. Black population, but the dementia care needs and resources of this population are not fully understood. In this paper, we describe the process of working collaboratively with a community partner and project advisory board to conduct a culturally informed project. Specifically, we describe the process of developing culturally informed instruments to collect data on dementia care needs and resources among African immigrants. Working together with a diverse project advisory board, a guide was developed and used to conduct community conversations about experiences with dementia/memory loss. Transcripts from six conversations with 24 total participants were transcribed and analyzed thematically by two independent coders in Nvivo. These qualitative findings were used to inform the development of a survey for quantitative data collection that is currently ongoing. Themes (e.g., cultural attitudes, challenges, and current resources) from the community conversations that informed the survey are described briefly. Despite the challenges of conducting research during a global pandemic, having trusting relationships with a partnering community organization and project advisory board facilitated the successful development of instruments to conduct preliminary dementia care research in an underserved population. We anticipate that survey results will inform interventions that increase education, outreach, and access to dementia care and caregiving resources for this population. It may serve as a model for community–university partnerships for similar public health efforts in dementia as well as other chronic disease contexts.
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影响因子：
1.9
作者：
Kerani R;Narita M;Lipira L;Endeshaw M;Holmes KK;Golden MR
通讯作者：
Golden MR
影响因子：
5.9
作者：
Barrera, Manuel, Jr.;Castro, Felipe G.;Strycker, Lisa A.;Toobert, Deborah J.
通讯作者：
Toobert, Deborah J.
DOI：
10.1177/0733464820977608
发表时间：
2022-03
期刊：
Journal of applied gerontology : the official journal of the Southern Gerontological Society
影响因子：
--
作者：
Nkimbeng M;Commodore-Mensah Y;Angel JL;Bandeen-Roche K;Thorpe RJ Jr;Han HR;Winch PJ;Szanton SL
通讯作者：
Szanton SL
影响因子：
5.9
作者：
Corbie-Smith, G;Miller, WC;Ransohoff, MF
通讯作者：
Ransohoff, MF
影响因子：
1.9
作者：
Blanchet, Rosanne;Sanou, Dia;Giroux, Isabelle
通讯作者：
Giroux, Isabelle