How and why patients made Long Covid.
How and why patients made Long Covid.
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DOI：
10.1016/j.socscimed.2020.113426
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发表时间：
2021-01
期刊：
影响因子：
--
通讯作者：
Perego E
中科院分区：
文献类型：
--
作者：
Callard F;Perego E
在大流行的头几个月，患者集体患上了长期新型冠状病毒（Long Covid）--以及同源术语“长途新型冠状病毒”（Long-haul Covid）。许多患者最初患有“轻度”疾病，他们使用各种证据和宣传来证明比武汉最初报告中所述的更长，更复杂的病程。长期的新冠肺炎（Long Covid）有一个强有力的说法，那就是它是第一种通过患者在Twitter上找到彼此而产生的疾病：它在短短几个月内通过各种媒体从患者转移到正式的临床和政策渠道。这张由两名患有这种疾病的患者绘制的长期新型冠状病毒的初步地图侧重于英国和美国的演员，并展示了患者如何组织认识权威。患者知识需要纳入COVID-19的概念化、研究和治疗。患者让人们看到了COVID-19症状的持续性和异质性。经历长期症状的患者（“长途运输者”）制造了长期新冠肺炎。长期的新冠肺炎挑战了早期临床和政府对新冠肺炎的假设。知识通过媒体从患者传播到正式的卫生和政策渠道。应将患者的专业知识和知识纳入大流行病证据库。
Patients collectively made Long Covid – and cognate term ‘Long-haul Covid’ – in the first months of the pandemic. Patients, many with initially ‘mild’ illness, used various kinds of evidence and advocacy to demonstrate a longer, more complex course of illness than laid out in initial reports from Wuhan. Long Covid has a strong claim to be the first illness created through patients finding one another on Twitter: it moved from patients, through various media, to formal clinical and policy channels in just a few months. This initial mapping of Long Covid – by two patients with this illness – focuses on actors in the UK and USA and demonstrates how patients marshalled epistemic authority. Patient knowledge needs to be incorporated into how COVID-19 is conceptualised, researched, and treated. Patients made visible the persistence and heterogeneity of COVID-19 symptoms. Patients experiencing long-term symptoms (‘long-haulers’) made Long Covid. Long Covid challenges early clinical and governmental assumptions about Covid. Knowledge travelled from patients through media to formal health and policy channels. Patient expertise and knowledge should be incorporated in the pandemic evidence base.
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影响因子：
2.1
作者：
Kingod, Natasja
通讯作者：
Kingod, Natasja
影响因子：
5.4
作者：
Dumit, J
通讯作者：
Dumit, J
影响因子：
24.8
作者：
Altmann, Daniel M.;Boyton, Rosemary J.
通讯作者：
Boyton, Rosemary J.
影响因子：
56.3
作者：
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通讯作者：
Yazdanpanah, Yazdan
影响因子：
2.4
作者：
Blease, Charlotte;Geraghty, Keith J.
通讯作者：
Geraghty, Keith J.