Electronic Health Record Portal Use by Family Caregivers of Patients Undergoing Hematopoietic Cell Transplantation: United States National Survey Study.
Electronic Health Record Portal Use by Family Caregivers of Patients Undergoing Hematopoietic Cell Transplantation: United States National Survey Study.
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作者：
Gupta V;Raj M;Hoodin F;Yahng L;Braun T;Choi SW
由于造血细胞移植患者的家属照顾者长期承担医疗、家庭、经济等多方面的照顾责任，他们也有身体、社会、心理和信息等多重需求。本研究探讨了家庭护理人员使用电子健康记录患者门户来管理自己及其造血细胞移植护理接受者的健康的普遍程度，以及与门户使用相关的潜在因素。电子护理人员健康调查最初是通过造血细胞移植护理人员的认知访谈方法开发的，由患者倡导组织在全国（美国）向造血细胞移植患者的家庭护理人员分发。它用于评估自我报告的护理人员人口统计、护理特征、患者健康问卷 4 的抑郁和焦虑、应对简短应对措施以及护理人员门户网站的使用情况来管理护理接受者及其自身的健康。我们发现 77% 的受访者 (720/937) 为他们的护理接受者、他们自己或两者访问电子健康记录患者门户。多变量模型表明，照顾者的年轻、白人、已婚、低收入照顾者更有可能使用被照顾者电子健康记录门户，这些照顾者照顾父母、与被照顾者住在一起，并且经历更多的照顾者抑郁症。年轻的白人高收入护理人员更有可能使用自己的电子健康记录门户，这些护理人员需要照顾父母并患有自己的慢性病。部分由于多重共线性，焦虑和应对并没有独立地影响该模型。调查结果可能为未来研究护理人员使用技术进行信息支持或干预（包括可穿戴设备和移动健康）开辟道路。 RR2-10.2196/4918
As family caregivers of patients undergoing hematopoietic cell transplantation have multifaceted caregiving responsibilities (such as medical, household, financial) of long duration, they also have multiple physical, social, psychological, and informational needs. This study explored the prevalence of electronic health record patient portal use by family caregivers for managing both their own and their hematopoietic cell transplantation care recipient’s health, as well as potential factors associated with portal use. An electronic caregiver health survey, first developed via cognitive interviewing methods of hematopoietic cell transplantation caregivers, was distributed nationally (in the United States) by patient advocacy organizations to family caregivers of hematopoietic cell transplantation patients. It was used to assess self-reported caregiver demographics, caregiving characteristics, depression and anxiety with the Patient Health Questionnaire–4, coping with the Brief COPE, and caregiver portal use to manage care recipient’s and their own health. We found that 77% of respondents (720/937) accessed electronic health record patient portals for their care recipients, themselves, or both. Multivariate models indicated use of care recipient electronic health record portals by caregivers was more likely with young, White, married, low-income caregivers caring for a parent, residing with the care recipient, and experiencing more caregiver depression. Caregiver use of their own electronic health record portal was more likely with young, White, high-income caregivers caring for a parent and experiencing chronic medical conditions of their own. Partially due to multicollinearity, anxiety and coping did not contribute independently to this model. Findings from the survey could open avenues for future research into caregiver use of technology for informational support or intervention, including wearables and mobile health. RR2-10.2196/4918
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影响因子：
3.1
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