Illness Narratives of Children Living with HIV Who Do Not Know Their HIV Status in Ghana: I'm Sick, But I Don't Know the Sickness-A Qualitative Study.
Illness Narratives of Children Living with HIV Who Do Not Know Their HIV Status in Ghana: I'm Sick, But I Don't Know the Sickness-A Qualitative Study.
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DOI：
10.1007/s10461-020-02884-4
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发表时间：
2020-11
影响因子：
4.4
通讯作者：
Sankofa Study Team
中科院分区：
文献类型：
--
作者：
Farthing H;Reynolds NR;Antwi S;Alhassan A;Ofori IP;Renner L;Amissah KA;Kusah JT;Lartey M;Paintsil E;Sankofa Study Team
尽管有向儿童披露艾滋病毒状况的指导方针，但大多数感染艾滋病毒的儿童并不知道他们的诊断。我们试图描述感染艾滋病毒但不知道自己状况的儿童的疾病和治疗概念。作为Sankofa试验的一部分，我们采访了435名6-18岁的儿童，他们在加纳两家教学医院的儿科艾滋病诊所接受临床护理。理论上的主题分析在答复中产生了主题。孩子们认为他们来诊所是为了收集药物，解决特定症状，预防和治疗“疾病”，或者作为他们日常生活的一部分。大多数孩子是从家人那里得知他们的“疾病”的。大多数（73.5%）的孩子从来没有和任何人谈论过他们的“疾病”;许多人担心后果。感染艾滋病毒的儿童如果不知道自己的状况，就会表现出对自己未知的“疾病”的预期和内在的耻辱感。了解儿童对其疾病的概念化方式，对于促进健康和向感染艾滋病毒的儿童提供适当信息具有重要意义。
Despite available guidelines for disclosure of HIV status to children, most children living with HIV are unaware of their diagnosis. We sought to characterize the concepts of illness and treatment among children living with HIV who do not know their status. As part of the Sankofa trial we interviewed 435 children aged 6–18 enrolled in clinical care at pediatric HIV clinics at two teaching hospitals in Ghana. Theoretic thematic analysis generated themes among responses. The children believe they come to the clinic to collect medication, to address specific symptoms, to prevent and treat ‘sickness’, or as part of their routine. Most children learned of their ‘illness’ from a family member. A majority (73.5%) of children had never talked about their ‘illness’ with anyone else; many feared consequences. Children living with HIV who do not know their status exhibit signs of anticipated and internalized stigma regarding their unknown ‘illness.’ An understanding of the way children conceptualize their illness has implications for health promotion and the provision of appropriate information to children living with HIV.
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影响因子：
1.7
作者：
Paintsil E;Renner L;Antwi S;Dame J;Enimil A;Ofori-Atta A;Alhassan A;Ofori IP;Cong X;Kyriakides T;Reynolds NR
通讯作者：
Reynolds NR
影响因子：
4.4
作者：
Bogart, Laura M.;Cowgill, Burton O.;Schuster, Mark A.
通讯作者：
Schuster, Mark A.
影响因子：
1.3
作者：
Earnshaw VA;Quinn DM;Park CL
通讯作者：
Park CL
影响因子：
15.8
作者：
European Pregnancy and Paediatric HIV Cohort Collaboration (EPPICC) study group in EuroCoord;Judd A;Chappell E;Turkova A;Le Coeur S;Noguera-Julian A;Goetghebuer T;Doerholt K;Galli L;Pajkrt D;Marques L;Collins IJ;Gibb DM;González Tome MI;Navarro M;Warszawski J;Königs C;Spoulou V;Prata F;Chiappini E;Naver L;Giaquinto C;Thorne C;Marczynska M;Okhonskaia L;Posfay-Barbe K;Ounchanum P;Techakunakorn P;Kiseleva G;Malyuta R;Volokha A;Ene L;Goodall R
通讯作者：
Goodall R
影响因子：
6
作者：
Corneli A;Vaz L;Dulyx J;Omba S;Rennie S;Behets F
通讯作者：
Behets F