The Ebola crisis and people with disabilities' access to healthcare and government services in Liberia.

The Ebola crisis and people with disabilities' access to healthcare and government services in Liberia.
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DOI:
10.1186/s12939-021-01580-6
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发表时间:
2021-11-24
影响因子:
4.8
通讯作者:
Colbourn T
Colbourn T
中科院分区:
医学2区
文献类型:
--
作者:
Kett M;Cole E;Beato L;Carew M;Ngafuan R;Konneh S;Colbourn T

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关于2014-2015年西非埃博拉危机对残疾人的影响的研究很少。本文概述了2015年利比里亚埃博拉病毒病(EVD)爆发的方式,突出了残疾人及其家庭现有的不平等和排斥。这里介绍的结果是一个更大的ESRC/国际发展部资助的混合方法研究项目在利比里亚(2014-2017年),其中包括在五个县进行定量家庭调查的一部分,辅以定性焦点小组讨论和采访残疾人和其他关键利益攸关方。独特的是,这项研究收集了有关残疾人EVD爆发经历的信息,以及额外的社会经济和包容性数据,将他们的经历与非残疾社区成员进行了比较。残疾人自己的反思表明,由于资源有限,许多主流公共卫生和医疗干预措施缺乏包容性,以及预先存在的歧视,边缘化和排斥,残疾人对EVD流行病的知识,准备和反应往往明显不同。与其他主要利益攸关方的访谈显示,对残疾问题缺乏认识,也没有足够的培训,无法将这一人群系统地纳入埃博拉应对活动和一般保健服务。主要调查结果包括需要了解和减轻对这一流行病的不平等反应所造成的直接和间接健康后果,以及医疗保健和社会服务应对残疾人的能力有限。从埃博拉疫情中,我们可以学到与当前COVID-19大流行相关的包容残疾人的经验教训。现在是采取措施确保残疾人在全球突发公共卫生事件期间不会继续被边缘化和排斥的时候了。在线版本包含补充材料,可通过10.1186/s12939-021-01580-6获得。
There has been little research on the impact of the 2014-2015 West African Ebola crisis on people with disabilities. This paper outlines the way in which the Ebola Virus Disease (EVD) outbreak in Liberia in 2015 highlighted existing inequalities and exclusion of people with disabilities and their households. The results presented here are part of a larger ESRC/DFID-funded mixed methods research project in Liberia (2014-2017) which included a quantitative household survey undertaken in five counties, complemented by qualitative focus group discussions and interviews with people with disabilities and other key stakeholders. Uniquely, this research gathered information about people with disabilities’ experience of the EVD outbreak, as well as additional socioeconomic and inclusion data, that compared their experience with non-disabled community members. Reflections by people with disabilities themselves show knowledge, preparation, and responses to the EVD epidemic was often markedly different among people with disabilities due to limited resources, lack of inclusion by many mainstream public health and medical interventions and pre-existing discrimination, marginalisation and exclusion. Interviews with other key stakeholder revealed a lack of awareness of disability issues or sufficient training to include this population systematically in both Ebola response activities and general health services. Key findings include the need to understand and mitigate direct and indirect health consequences of unequal responses to the epidemic, as well as the limited capacity of healthcare and social services to respond to people with disabilities. There are lessons to be learned from Ebola outbreak around inclusion of people with disabilities, relevant to the current COVID-19 pandemic. Now is the time to undertake measures to ensure that people with disabilities do not continue to be marginalised and excluded during global public health emergencies. The online version contains supplementary material available at 10.1186/s12939-021-01580-6.
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