A randomized controlled trial evaluating the effects of social networking on chronic disease management in rheumatoid arthritis.
A randomized controlled trial evaluating the effects of social networking on chronic disease management in rheumatoid arthritis.
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DOI：
10.1016/j.semarthrit.2022.152072
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发表时间：
2022-10
影响因子：
5
通讯作者：
Suarez-Almazor, Maria E.
中科院分区：
文献类型：
--
作者：
Lopez-Olivo, Maria A.;Foreman, Jessica T.;Leung, Cheuk;Lin, Heather Y.;Westrich-Robertson, Tiffany;Hofstetter, Catherine;des Bordes, Jude K. A.;Lyddiatt, Anne;Leong, Amye;Willcockson, Irmgard U.;Peterson, Susan K.;Suarez-Almazor, Maria E.
关键词：
社交网络已被证明可以改善某些患者群体的健康状况。虽然类风湿性关节炎（RA）患者越来越多地使用社交网络与同伴交流，但这些互动的影响在很大程度上是未知的。在一项随机对照试验中，我们比较了参加由同行领导主持的社交网络小组并可以访问提供RA材料的静态网站的RA患者与只能访问该网站的对照组患者。主要结局是患者的RA知识、自我效能和授权。次要结果包括参与期望的健康行为，以及对同伴支持的满意度等。在3个月和6个月时进行随访评估。从未签到的参与者被排除在初步分析之外。105名参与者被随机分为两组。平均年龄52岁（±12.4），92.4%为女性。两组患儿知识得分均有改善，但只有对照组患儿在3个月和6个月时差异有统计学意义（p≤0.02）。两组的自我效能得分也有所提高，但只有Facebook组在6个月时观察到的差异是显著的（p=0.02）。在进行组间比较时，在3个月时，对照组的知识进步比Facebook组的更大（平均差异为0.4 vs 0.1, p=0.03）。除同伴支持满意度外，两组间的次要结局无其他差异。与对照组相比，Facebook®组在5个子量表中的3个中报告了更高的同伴支持满意度（p≤0.04）。使用在线社交网络的参与者对同伴支持的满意度更高，但这并没有转化为更多的疾病知识或授权。
Social networking has been shown to improve health outcomes in certain patient populations. While patients with rheumatoid arthritis (RA) increasingly use social networking to communicate with peers, the effects of these interactions are largely unknown. In a randomized controlled trial, we compared RA patients who participated in a social networking group moderated by peer leaders and who had access to a static website offering RA materials with a control group, who only had access to the website. The primary outcomes were patients’ RA knowledge, self-efficacy and empowerment. Secondary outcomes included participation in desired health behaviors, and satisfaction with peer support, among others. Follow-up assessments were conducted at 3 and 6 months. Participants who never signed in were excluded from the primary analysis. 105 participants were randomized to each group. Mean age was 52 (±12.4) and 92.4% were females. Knowledge scores improved in both groups, but only in the control group the differences observed at 3 and 6 months were significant (p≤0.02). Self-efficacy scores also improved in both groups, but only the differences observed at 6 months in the Facebook group were significant (p=0.02). When comparing groups, at 3 months the knowledge improvements observed in the control group were greater compared with those observed in the Facebook group (mean difference 0.4 versus 0.1; respectively, p=0.03). No other differences were observed in secondary outcomes between the 2 groups, except in peer support satisfaction. The Facebook® group reported greater peer support satisfaction in 3 out 5 subscales compared with the control group (p≤0.04). Peer support satisfaction was higher in participants using an online social network, but this was not translated into greater disease knowledge or empowerment.
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