EAGER: Synthesizing Notes from Electronic Health Records to Make Them Actionable for Heart Failure Patients

这项探索性研究的早期概念拨款旨在帮助患者和护理人员增加对电子健康信息的访问。研究的重点是电子健康档案（EHR）。1996年，《健康保险流通与责任法》赋予病人应要求获得其医疗记录的权利。随着患者获得更多的机会，患者可能会更多地投资于管理自己的医疗保健，并更好地照顾自己。虽然在与患者沟通电子病历内容方面取得了一些进展，但由于临床医生的沟通意图以及围绕诊断和护理的社会和文化问题，医生和护士的笔记不容易传达。这项工作的进展将减少护理过程中的差距，潜在地影响消费者方面的患者护理，并成为未来系统开发的基础。本研究探讨了向患者提供这些信息的新的和更有效的表现（例如，图形，抽象，可操作）。该项目包括以下活动：1)收集患者笔记和临床医生与患者的交流意图，揭示意图与解释之间的差距；2)手工迭代新的文本和视觉摘要，直到它们与患者达到预期的沟通。提案团队的专业知识将被用于设计信息的抽象，以帮助人们做出决策，并积极地改变他们在压力或不确定性下的行为，以承担这些活动。

This Early-concept Grant for Exploratory Research aims to help patients and caregivers have increased access to electronic health information. The research focuses on the Electronic Health Record (EHR). In 1996, the Health Insurance Portability and Accountability Act entitled patients the right to obtain their medical records on request. With greater patient access, patients may become more invested in the management of their own health care and take better care of themselves. While there have been some advances in communicating EHR content to patients, physicians' and nurses' notes are not easy to convey due to communication intent of clinicians and the social and cultural issues that surround diagnosis and care. Advances from this work will reduce gaps in the care process, potentially impact consumer side patient care, and become the basis for future systems development.The research investigates new and more effective presentations of this information to patients (e.g., graphic, abstracted, actionable). The project includes the following activities: 1) collect patient notes and the communicative intent for both clinicians and patients to reveal the gap between intention and interpretation; 2) iterate on new textual and visual summaries by hand until they achieve the intended communication with patients. The proposal team's expertise will be leveraged in designing abstractions of information to help people make decisions and positively change their behavior under stress or uncertainty to undertake these activities.