SCC-CIVIC-PG Track B: Co-Designing Protocols for Data Creation, Analysis, and Use among Local Care Networks in Seattle and Boston to Enhance Disaster Resilience

危机催化现有的和潜在的群体参与集体行动--要求个人将他们的全神贯注、独特技能和宝贵的信息资源集中在一起，以便有效地应对一系列事件，包括全球卫生大流行、野火、地震等。一旦召开会议，危机信息学中的一个悬而未决的问题是，如何最好地组织和协调潜在群体，以进行有效的应对，特别是那些传统上代表人数不足的群体？当群体之间存在信息不对称(优势和劣势)，阻碍有效合作时，这个问题就变得更加突出。在新冠肺炎的背景下，克服信息不对称对于有效共享和汇集信息资源至关重要。特别是，需要更好地使市政府的战略外联和正式信息传播活动与注重分配当地资源的公民领导的合作团体保持一致。该项目将后者视为“护理网络”--个人围绕特定位置的脆弱性联合在一起，这些脆弱性因正在进行的全球卫生大流行而暴露或加剧。根据定义，护理网络独立于正式的政府机构运作，有时是因为公共部门未能照顾到历史上服务不足的社区。为了研究来自关怀网络的信息与自上而下的、集中的、政府的新冠肺炎响应的潜在集成，拟议的以研究为中心的试点项目寻求与关怀网络、公共图书馆和西雅图和波士顿的市政府共同设计用于数据创建、分析和使用的模块化协议的原型。这些议定书将灵活应对各种灾害和危机，并在不那么极端的情况下使用，以建立对未来大流行或其他危机事件的复原力。这些协议还将专门处理隐私保护和数据格式，以及有意义的数据交换所必需的数据识别、收集、存储、清理、分析、可视化、使用和删除。在四个月的规划拨款期间，PI团队将组建，研究团队将收集和评估西雅图和波士顿有关市政311、推特和其他公开数据的相关性。关于大流行的主要自上而下和自下而上的信息来源将被编目，在全面奖励期间，将优先考虑超出本规划拨款范围的护理网络的潜在参与。将参与关怀网络，以便收集关于他们正在收集的数据类型、他们是否与谁共享任何数据以及他们在与地方政府交换信息时对隐私保护的偏好的信息。这笔规划赠款下的参与活动将包括社区和城市合作伙伴以及PI小组、高级人员学术合作者和顾问之间的远程视频会议。促进将吸引更多以社区为基础的参与者或相关的利益相关者，并为未来的试点计划提供基础。该奖项反映了NSF的法定使命，并通过使用基金会的智力优势和更广泛的影响审查标准进行评估，被认为值得支持。

Crises catalyze existing and latent groups of people to engage in collective action - asking individuals to pool their undivided attention, unique skills, and valuable informational resources together in order to respond effectively to a range of events, including global health pandemics, wildfires, earthquakes, etc. Once convened, an open question within crisis informatics is how to best organize and coordinate latent groups for effective response, especially those representing traditionally underrepresented populations? This question becomes all the more salient when there are information asymmetries (advantages and disadvantages) between groups that prohibit effective cooperation. In the context of Covid-19 it's critical that information asymmetries are overcome to effectively share and pool informational resources. In particular, there is a need to better align the strategic outreach and formal information dissemination activities of municipal governments with citizen-led cooperative groups focused on distribution of local resources. This project considers the latter to be “networks of care” - individuals coalescing around particular situated vulnerabilities that are revealed or exacerbated by the ongoing global health pandemic. Networks of care, by definition, operate independent from formal government agencies, sometimes because the public sector has failed to care for historically underserved communities. To study the potential integration of information from networks of care with top-down, centralized, governmental COVID-19 responses, the proposed research-centered pilot project seeks to prototype modular protocols for data creation, analysis, and use - co-designed with care networks, public libraries, and municipal government in Seattle and Boston. These protocols will be flexible to a variety of disasters and crises, and usable in less extreme contexts to build resilience to future pandemics or other crisis events. These protocols will also specifically address privacy protections and data formats, as well as data literacy, collection, storage, cleaning, analysis, visualization, use, and deletion that are necessary for meaningful data exchange.During the four month planning grant the PI team will be assembled and the research team will collect and assess the relevance of municipal 311, Twitter, and other open data about COVID-19 in Seattle and Boston. Major top-down and bottom-up sources of information about the pandemic will be catalogued, and care networks beyond those named in this planning grant will be prioritized for potential engagement during a full award. Participating care networks will be engaged so as to gather information about the types of data they are collecting, whether they share any of that data and with whom, and their preferences for privacy protections in exchanging information with local governments. Engagement activities under this planning grant will include remote video-conferencing meetings among the community and city partners, as well as the PI team, senior personnel academic collaborators and consultants. Facilitation will elicit further community-based participants or relevant stakeholders and provide the basis for a future pilot proposal.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.