SCC-CIVIC-PG Track B: Co-Designing Protocols for Data Creation, Analysis, and Use among Local Care Networks in Seattle and Boston to Enhance Disaster Resilience

危机促使现有的和潜在的人群采取集体行动-要求个人集中他们的注意力，独特的技能和宝贵的信息资源，以便有效地应对一系列事件，包括全球卫生流行病，野火，地震等。特别是那些代表传统上代表性不足的人口的人？当群体之间存在信息不对称（优势和劣势）而无法进行有效合作时，这个问题就变得更加突出。在新冠肺炎疫情的背景下，克服信息不对称以有效共享和汇集信息资源至关重要。特别是，需要更好地将市政府的战略外联和正式信息传播活动与以分配地方资源为重点的公民领导的合作团体相结合。该项目认为后者是"护理网络"-个人围绕着正在发生的全球卫生大流行病所揭示或加剧的特定脆弱性而联合起来。根据定义，护理网络独立于正式的政府机构运作，有时是因为公共部门未能照顾到历史上服务不足的社区。为了研究来自护理网络的信息与自上而下、集中的政府COVID-19应对措施的潜在整合，拟议中的以研究为中心的试点项目旨在与西雅图和波士顿的护理网络、公共图书馆和市政府共同设计用于数据创建、分析和使用的模块化协议原型。这些协议将对各种灾害和危机具有灵活性，并可在不太极端的情况下使用，以建立对未来流行病或其他危机事件的复原力。这些协议还将专门解决隐私保护和数据格式，以及数据扫盲，收集，存储，清理，分析，可视化，使用和删除是必要的有意义的数据交换。在四个月的规划拨款PI团队将组装和研究团队将收集和评估市政311，Twitter，以及其他有关西雅图和波士顿的COVID-19公开数据。将对有关大流行的主要自上而下和自下而上的信息来源进行编目，并将优先考虑本规划补助金中提到的护理网络，以便在全额奖励期间进行潜在参与。参与的护理网络将参与其中，以便收集有关他们正在收集的数据类型，他们是否与谁共享任何数据以及他们在与地方政府交换信息时对隐私保护的偏好的信息。 根据这项规划赠款的参与活动将包括社区和城市合作伙伴之间的远程视频会议，以及PI团队，高级人员学术合作者和顾问。该奖项反映了NSF的法定使命，并通过使用基金会的知识价值和更广泛的影响审查标准进行评估，被认为值得支持。

Crises catalyze existing and latent groups of people to engage in collective action - asking individuals to pool their undivided attention, unique skills, and valuable informational resources together in order to respond effectively to a range of events, including global health pandemics, wildfires, earthquakes, etc. Once convened, an open question within crisis informatics is how to best organize and coordinate latent groups for effective response, especially those representing traditionally underrepresented populations? This question becomes all the more salient when there are information asymmetries (advantages and disadvantages) between groups that prohibit effective cooperation. In the context of Covid-19 it's critical that information asymmetries are overcome to effectively share and pool informational resources. In particular, there is a need to better align the strategic outreach and formal information dissemination activities of municipal governments with citizen-led cooperative groups focused on distribution of local resources. This project considers the latter to be “networks of care” - individuals coalescing around particular situated vulnerabilities that are revealed or exacerbated by the ongoing global health pandemic. Networks of care, by definition, operate independent from formal government agencies, sometimes because the public sector has failed to care for historically underserved communities. To study the potential integration of information from networks of care with top-down, centralized, governmental COVID-19 responses, the proposed research-centered pilot project seeks to prototype modular protocols for data creation, analysis, and use - co-designed with care networks, public libraries, and municipal government in Seattle and Boston. These protocols will be flexible to a variety of disasters and crises, and usable in less extreme contexts to build resilience to future pandemics or other crisis events. These protocols will also specifically address privacy protections and data formats, as well as data literacy, collection, storage, cleaning, analysis, visualization, use, and deletion that are necessary for meaningful data exchange.During the four month planning grant the PI team will be assembled and the research team will collect and assess the relevance of municipal 311, Twitter, and other open data about COVID-19 in Seattle and Boston. Major top-down and bottom-up sources of information about the pandemic will be catalogued, and care networks beyond those named in this planning grant will be prioritized for potential engagement during a full award. Participating care networks will be engaged so as to gather information about the types of data they are collecting, whether they share any of that data and with whom, and their preferences for privacy protections in exchanging information with local governments. Engagement activities under this planning grant will include remote video-conferencing meetings among the community and city partners, as well as the PI team, senior personnel academic collaborators and consultants. Facilitation will elicit further community-based participants or relevant stakeholders and provide the basis for a future pilot proposal.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.