HCC: Small: Designing Health Data-Tracking Technologies for Children

智能手表、健身手环和患者监测设备等数据跟踪技术已被广泛采用来管理儿童的健康和健康。如果成功，跟踪技术和实践可以鼓励儿童的自我意识，增强健康知识，并培养代理和控制感。然而，跟踪儿童的健康状况是复杂的，需要儿童、父母和医疗保健提供者之间的合作，以及能够为不同年龄的儿童和不同健康状况的儿童提供服务的设计。许多现有的系统未能应对这些挑战，主要是为总体健康和满足父母的跟踪需求而不是儿童的需求而设计的。该项目旨在通过系统地审查针对不同年龄、健康状况和合作模式的儿童的数据跟踪技术的设计来研究这些挑战。这项工作的结果将与患者倡导团体和健康组织广泛分享。该项目专注于四个相互交织的研究主题：数据需求和数据素养；数据工作和数据表示；针对儿童、父母或医疗保健提供者的不同跟踪模式；以及不同健康状况的不同数据需求。为了支持最后一项，并增加研究结果的概括性，该项目将涉及三个不同的健康背景：儿童的总体健康，哮喘作为常见慢性病的一个例子，以及一组具有相似特征的罕见疾病。该项目将包括三个相互关联的阶段：第一，调查儿童、家长和医疗保健提供者的数据素养、跟踪经验和技术使用的访谈研究；第二，探索父母和儿童的数据需求、数据工作和数据表示的联合设计研究；以及第三，设计和部署研究，检查利益相关者在健康跟踪和征求反馈以进一步改进设计方面的现场经验。该奖项反映了NSF的法定使命，并通过使用基金会的智力优势和更广泛的影响审查标准进行评估，被认为值得支持。

Data-tracking technologies such as smartwatches, fitness bands, and patient monitoring devices have been widely adopted to manage children’s health and wellness. When successful, tracking technologies and practices can encourage children’s self-awareness, enhance health knowledge, and foster a sense of agency and control. However, tracking health for children is complex, requiring collaboration between children, parents, and healthcare providers, as well as designs that can serve children of different ages and children with varying health conditions. Many existing systems fail to meet these challenges, being mainly designed for general wellness and to meet parents’ tracking needs rather than children's. This project aims to study these challenges through a systematic approach to examining the design of data-tracking technologies for children of different ages, health contexts, and modes of collaboration. Results from the work will be shared broadly with patient advocacy groups and health organizations.The project focuses on four intertwined research topics: data needs and data literacy; data work and data representations; different modes of tracking intended for children, parents, or healthcare providers; and varying data needs with different health conditions. To support the last, and to increase the generalizability of the findings, the project will address three diverse health contexts: children’s general wellness, asthma as an example of a common chronic illness, and a set of rare diseases that share similar characteristics. The project will consist of three interconnected stages: first, an interview study examining data literacy, tracking experiences, and technology use with children, parents, and healthcare providers; second, a co-design study exploring parents and children’s data needs, data work, and data representations; and third, a design and deployment study examining stakeholders’ in situ experiences of health tracking and soliciting feedback for further improvement in the designs.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.