Narrating Autoimmunity through Biographies of Illness, Narrative Medicine, and Treatment

通过疾病传记、叙事医学和治疗来讲述自身免疫

• 批准号: 2230957
• 负责人: Kalindi Vora
• 金额: $ 31.09万
• 依托单位: Yale University
• 依托单位国家: 美国
• 项目类别: Standard Grant
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-03-01 至 2024-12-31
• 项目状态: 已结题
• 来源: https://www.nsf.gov/awardsearch/showAward?AWD_ID=2230957&HistoricalAwards=false
• 关键词: Narrating; Autoimmunity; through; Biographies; Illness

This project focuses on how healthcare practitioners and patients coproduce knowledge about autoimmunity and its treatment. This study looks at how the organizing metaphor of autoimmunity understanding of the body and its processes. It will explore how autoimmunity is being actively conceptualized through patient communities and alternative practice in functional medicine by looking at how patients and patient communities with chronic conditions communicate. This study will be of interest to medical researchers, health care workers, patients and their families. The goal of this project is to understand how patient-practitioner co-production of knowledge, specifically through practitioner attention to patient narrative and biography, to address these as vectors of illness. This research uses methods from medical anthropology to understand how functional medicine, an integrative approach to autoimmune disease, might serve as a model. During the fellowship period, the PI will conduct ethnographic study of individual subjective narratives of autoimmune disease through individual interviews with patients and practitioners and observation of online communities of illness. The study frames these narratives through a science and technology studies approach to analyze the social and cultural factors shaping the medical and popular concepts that allow patients and practitioners to link experience of social exclusion to symptoms marked as “autoimmune.” Beyond the specific fields of STS and medical anthropology, this project will help inform future projects that aim to advance personalized and narrative healthcare practice.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.

该项目的重点是医疗从业者和患者如何共同产生有关自身免疫及其治疗的知识。本研究旨在探讨自身免疫的组织隐喻如何理解身体及其过程。它将探讨如何通过患者社区和功能医学中的替代实践积极概念化自身免疫，通过观察慢性病患者和患者社区如何沟通。这项研究将引起医学研究人员、卫生保健工作者、患者及其家属的兴趣。该项目的目标是了解患者-医生如何共同生产知识，特别是通过医生关注患者的叙述和传记，以解决这些疾病的载体。这项研究使用医学人类学的方法来了解功能医学，一种治疗自身免疫性疾病的综合方法，如何可以作为一个模型。在研究期间，PI将通过与患者和从业人员的个人访谈以及对在线疾病社区的观察，对自身免疫性疾病的个人主观叙述进行人种学研究。该研究通过科学和技术研究方法来分析塑造医学和流行概念的社会和文化因素，这些因素允许患者和从业者将社会排斥的经历与标记为“自身免疫”的症状联系起来。除了STS和医学人类学的特定领域之外，该项目还将有助于为未来旨在推进个性化和叙事性医疗实践的项目提供信息。该奖项反映了NSF的法定使命，并通过使用基金会的知识价值和更广泛的影响审查标准进行评估，被认为值得支持。