Problems of political representation in the field of Biopolitics: Parliamentary decision and popular preferences on Pre-Implantation Genetic Diagnosis

生物政治领域的政治代表性问题：议会决策和民众对植入前基因诊断的偏好

• 批准号: 284112190
• 负责人: Professor Dr. Kai Arzheimer
• 金额: --
• 依托单位: Department of Political Science
• 依托单位国家: 德国
• 项目类别: Research Grants
• 财政年份: 2016
• 资助国家: 德国
• 起止时间: 2015-12-31 至 2017-12-31
• 项目状态: 已结题
• 来源: https://gepris.dfg.de/gepris/projekt/284112190?language=en
• 关键词: Problems; political; representation; field; Biopolitics

In 2011, the German parliament decided to grant couples facing high genetic risks an exemption from the blanket ban on Pre-Implantation Genetic Diagnosis (PGD). But even these new rules are very restrictive compared to the regulation of PGD in many other European countries. At the same time, there is some scattered evidence that the general public holds much more liberal preferences than lawmakers. This presumptive representation gap is significant, because the already large medical and commercial potential of PGD is rapidly growing further, while regulations seems unable to keep up with the fast pace of innovation in this field. The aim of this project is to assess the size and substantive relevance of the representation gap by surveying the general population on their preferences on PGD and related bioethical issues. On the one hand, the presumptive gap could simply be the consequence of a lack of information and deliberation on behalf of the citizenry. On the other hand, it is possible that ordinary citizens hold different opinions, beliefs, and preferences, which result in a demand for regulation that is more liberal than the options debated in parliament. To test these hypotheses, the survey will implement an experimental design:a) Support for further liberalisation will be probed in a randomly selected subgroup of respondents b) Both subgroups will then be confronted with a sample of the arguments that were raised during the parliamentary debates to see if they can be convinced to support the current legislation.Thus, it will be possible to assess how problematic any normative discrepancies between citizens and their representatives really are.

2011年，德国议会决定给予面临高遗传风险的夫妇全面禁止植入前遗传诊断(PGD)的豁免权。但即使是这些新规定，与许多其他欧洲国家对PGD的监管相比，也非常严格。与此同时，一些零星的证据表明，普通公众比立法者持有更自由的偏好。这种假定的代表性差距是显著的，因为PGD本已巨大的医疗和商业潜力正在迅速进一步增长，而监管似乎无法跟上该领域创新的快速步伐。该项目的目的是通过调查普通民众对PGD的偏好和相关的生物伦理问题来评估代表性差距的大小和实质性意义。一方面，假定的差距可能仅仅是缺乏信息和代表公民进行审议的结果。另一方面，普通公民可能持有不同的观点、信仰和偏好，这导致对监管的要求比议会辩论的选项更自由。为了检验这些假设，调查将实施一项实验设计：a)将在随机选择的受访者小组中调查支持进一步自由化的问题；b)然后，两个小组都将面对议会辩论期间提出的论点样本，看看他们是否能被说服支持当前的立法。因此，将有可能评估公民和他们的代表之间的任何规范差异到底有多大的问题。