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The Socialization of Dementia: How welfare state politics and cultural change impact living with dementia in community-based care arrangements

痴呆症的社会化：福利国家政治和文化变革如何影响社区护理安排中的痴呆症患者

基本信息

批准号：
289753230
负责人：
Dr. Mike Laufenberg
金额：
--
依托单位：
Arbeitsbereich Politische Soziologie
依托单位国家：
德国
项目类别：
Research Grants
财政年份：
2016
资助国家：
德国
起止时间：
2015-12-31 至 2019-12-31
项目状态：
已结题

来源：
https://gepris.dfg.de/gepris/projekt/289753230?language=en
关键词：
Socialization Dementia How welfare state

项目摘要

This research project uses ethnographic case studies to analyze how the ongoing transformation of the welfare state, the cultural ideas about dementia and the lived experience of dementia are interrelated in the German context. In doing so, the project aims to examine current forms of socialization of old age and its associated health risks. Due to the fact that living with dementia requires high levels of care work (nursing, assistance, emotional support), care settings for people with dementia will be the primary focus. More specifically, the analysis will focus on new forms of community-based care arrangements (e.g., dementia-friendly communities), which are currently advertised as a solution to the growing need for care work for the elderly in general and for those with dementia in particular. On the one hand, the case studies aim to clarify how the transformation of welfare state politics (e.g. decentralization of government, monetarization and marketization of care services, activation of self-support resources within individuals and their environments) influences the everyday practice of caring for those living with dementia. On the other hand, this project analyzes how medicalization as a social practice shapes both the meaning of dementia and the organization and realization of care work. The assumption is that community-based care arrangements are coined by heterogeneous, partially conflicting logics: Care work for people with dementia faces political pressures to cut costs and increase efficiency, while the caregivers themselves endorse an ethics of good care that would require more labour force and time resources to be transferred into practice. Against this background, the project explores if and to what extent current forms of community-based care arrangements open new possibilities for individual and collective agency in the face of contemporary welfare state politics as well as the medicalization of dementia. By conducting empirical-ethnographic field studies (combining participant observation, focused semi-structured interviews, and document analysis), this is the first study to systematically explore within the German context how the current structural liberalization and economization of the care sector as well as cultural changes in the perception of dementia affect living with dementia in community-based care arrangements. The project is situated in the intersection of welfare state studies, sociology of medicine and care, and the sociology of ageing; it makes systematic use of theories and methods from gender and disability studies.

本研究项目使用民族志个案研究，分析如何正在进行的福利国家的转型，痴呆症的文化观念和痴呆症的生活经验是相互关联的，在德国的背景下。在这样做的过程中，该项目旨在审查目前老年人社会化的形式及其相关的健康风险。由于痴呆症患者的生活需要高水平的护理工作（护理，援助，情感支持），痴呆症患者的护理环境将是主要重点。更具体地说，分析将侧重于新形式的社区护理安排（例如，老年痴呆症友好社区），目前宣传这些社区是为了解决老年人，特别是老年痴呆症患者日益增长的护理工作需求。一方面，个案研究的目的是澄清福利国家政治的转变（例如，政府的权力下放，货币化和市场化的护理服务，激活自我支持的资源在个人和他们的环境）如何影响日常的做法照顾那些生活与痴呆症。另一方面，本项目分析了医疗化作为一种社会实践如何塑造痴呆症的含义以及护理工作的组织和实现。假设是，基于社区的护理安排是由异质的，部分相互冲突的逻辑：痴呆症患者的护理工作面临着削减成本和提高效率的政治压力，而护理人员自己则赞同良好护理的道德，这需要更多的劳动力和时间资源才能付诸实践。在此背景下，该项目探讨了当前形式的社区护理安排是否以及在多大程度上为当代福利国家政治以及痴呆症的医疗化中的个人和集体机构开辟了新的可能性。通过进行医疗人种学实地研究（结合参与观察，重点半结构化访谈和文件分析），这是第一项研究，系统地探讨在德国的背景下，如何目前的结构自由化和经济化的护理部门以及文化的变化，在痴呆症的看法影响痴呆症患者的生活在社区为基础的护理安排。该项目处于福利国家研究、医疗和护理社会学以及老龄社会学的交叉点;它系统地利用了性别和残疾研究的理论和方法。