Long-distance caregiving at the end of life (LoCatE)
临终时的远程护理 (LoCatE)
基本信息
- 批准号:449568227
- 负责人:
- 金额:--
- 依托单位:
- 依托单位国家:德国
- 项目类别:Research Grants
- 财政年份:2020
- 资助国家:德国
- 起止时间:2019-12-31 至 2022-12-31
- 项目状态:已结题
- 来源:
- 关键词:
项目摘要
Of the approximately 4.7 million people in Germany caring for a relative, many live at a physical distance from their loved one. Providing care from afar to a terminally ill or dying person is associated with specific challenges and burdens. For the German context, research is lacking on the specific experiences and needs of caregivers in end-of-life situations who are geographically far from their relative.The study explicitly addresses caregivers, as they often put aside their own needs to focus on supporting their loved ones. The overarching goal is to detail the specifics of long-distance caregiving at the end of life in Germany, outlining how distance shapes end-of-life caregiving and to identify the needs of end-of-life long-distance caregivers. The core research questions are: (1) How do caregivers experience their long-distance caregiving for a relative who is at the end of life? (2) What are specific (support) needs that end-of-life long-distance caregivers have and support they want for themselves and the care recipient? The study will (i) describe the specifics of long-distance caregiving at the end of life and (ii) give recommendations for support interventions for long-distance caregivers.The exploratory qualitative study is guided by an inductive logic and draws on one-time semi-structured interviews. The qualitative approach is appropriate to explore the understudied phenomenon of long-distance caregiving at the end of life. To grasp the multiplicity of caregiving experiences, long-distance caregivers of patients in early palliative care as well as in a very advanced stage will be included in the study. The study is divided into five phases: (1) preparation and pretest, (2) data collection and primary analysis, (3) data analysis and interpretation, (4) advisory board workshop and (5) conclusions and recommendations.The study aims at producing knowledge that will inform society regarding the integration of and support for family caregivers of patients at their end of life. The study is particularly relevant as the members of more and more families live in spatial separation. This current development is likely to intensify in the future and will challenge traditional models of family care for one another and raise new caregiving issues that must be addressed from a social and health policy point of view.
在德国约有470万人需要照顾亲属,其中许多人与亲人住得很远。从远处向身患绝症或垂死的人提供护理涉及特定的挑战和负担。对于德国的情况,缺乏对临终关怀者的具体经验和需求的研究,这些人在地理上远离他们的亲属。这项研究明确针对照顾者,因为他们经常把自己的需求放在一边,专注于支持他们所爱的人。总体目标是详细说明德国临终时的远程护理的具体情况,概述距离如何影响临终护理,并确定临终远程护理人员的需求。本研究的核心问题是:(1)照顾者如何体验他们对临终亲人的远距离照顾?(2)临终远程照护者有哪些具体的(支持)需求,以及他们希望为自己和照护对象提供哪些支持?该研究将(i)描述的细节,在生命的尽头,(ii)给远程carrier.The探索性定性研究的支持干预措施的建议是由一个归纳逻辑的指导下,并借鉴了一次性的半结构化访谈。定性的方法是适当的,以探讨研究不足的现象,长距离的生命结束。为了掌握多重的临终关怀经验,在早期姑息治疗以及在一个非常先进的阶段,患者的远程照顾者将被纳入研究。研究分为五个阶段:(1)准备和预测试,(2)数据收集和初步分析,(3)数据分析和解释,(4)咨询委员会研讨会,(5)结论和建议,研究的目的是提供知识,告知社会有关患者临终家庭照顾者的融入和支持。由于越来越多的家庭成员居住在空间分离的地方,这项研究尤其具有现实意义。目前的这一事态发展今后可能会加剧,并将对传统的家庭相互照顾模式提出挑战,提出必须从社会和卫生政策角度加以解决的新的家庭问题。
项目成果
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Privatdozentin Dr. Franziska A. Herbst其他文献
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