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Counseling Neuro-Degenerative Disease Patients to Alleviate Their Distress and Torments

咨询神经退行性疾病患者以减轻他们的痛苦和折磨

基本信息

批准号：
09470534
负责人：
YOKOTE Yoshie
金额：
$ 2.3万
依托单位：
OKAYAMA PREFECTURAL UNIVERSITY (2000)Sapporo Medical University (1997-1999)
依托单位国家：
日本
项目类别：
Grant-in-Aid for Scientific Research (B).
财政年份：
1997
资助国家：
日本
起止时间：
1997 至 2000
项目状态：
已结题

项目摘要

This report describes the four-year research carried out into the role of counseling in caring for patients with neuro-degenerartive disease.The first phase of this research began with the investigation of 22 nurses' impressive experiences in caring for neuro-degenerative disease patients.The nurses identified the following problems :1) Difficulties in dealing with patient problems and distress ;2) Obstruction to the process of medical treatment ;3) The gap between the goal of treatment and the present condition of The dignity of the patient as a human being ; and4) The patient's closed mind.Then, a counseling needs assessment was conducted with hospitalized patients, and 10 percent of them were found to be our candidates. On three different occasions, 30 patients had counseling with counselors, and the following sources of anxiety were clarified : the worsening of their symptoms, difficulty in admitting their disease, the uncertain future, the dilemma of forming a relationship with others or of feeling estranged from them, fear about returning to their normal life, and desire to be understood by others.The above-mentioned results showed how important counseling was in caring for patients with neuro-degenerartive disease. As a result, a team of nurses and counselors worked together to offer a counseling service to 8 patients. It was found that all of the patients preferred being counseled by their own nurses, and also that counseling helped the nursea to understand their patients better than before.Finally, a follow-up survey was carried out and found that most of the patients who had undergone counseling while in hospital needed some counseling even after leaving the hospital.The overall results of this research revealed that neuro-degenerartive disease patients clearl need professional counseling with thier own nursing experts throughout the process of their illness.

本报告描述了一项为期四年的关于心理咨询在护理神经退行性疾病患者中的作用的研究，研究的第一阶段从22名护理人员在护理神经退行性疾病患者中令人印象深刻的经历开始，这些护理人员发现了以下问题：1）处理患者问题和痛苦的困难;2）阻碍医疗过程; 3）治疗目标与患者人格尊严现状的差距; 4）患者封闭的心理。然后，对住院患者进行咨询需求评估，发现10%的患者是我们的候选人。在三个不同的场合，30名患者与咨询师进行了咨询，并明确了以下焦虑来源：他们的症状恶化，难以承认自己的疾病，不确定的未来，与他人建立关系或感到疏远的困境，害怕恢复正常生活，上述结果显示心理辅导在照顾神经退化性疾病病患时的重要性。因此，一个由护士和咨询师组成的团队共同努力，为8名患者提供咨询服务。结果发现，所有的病人都更喜欢由自己的护士提供咨询，而且咨询有助于护士更好地了解他们的病人。随访发现，大部分在住院期间接受过心理咨询的患者在出院后仍需接受心理咨询。退化性疾病患者在其整个疾病过程中明显需要由他们自己的护理专家进行专业咨询。