A study of social supports for people afflicted with facial disfigurements and their families

面部畸形患者及其家人的社会支持研究

• 批准号: 14572283
• 负责人: FUJII Teruaki
• 金额: $ 1.92万
• 依托单位: Kumamoto University
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Scientific Research (C)
• 财政年份: 2002
• 资助国家: 日本
• 起止时间: 2002 至 2003
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/en/grant/KAKENHI-PROJECT-14572283/
• 关键词: Face of destiny; discrimination; benign tumor; 容貌障害者; 人間基礎教育; トラウマ; 人権教育; 差別・偏見・蔑視; 家族・学校・地域; 顔あざ; ピアカウンセリング; 質的研究; セルフヘルプグループ; 太田母斑

This research resulted that head investigator Teruaki Fujii with a pink, round mark began to show on hi's right cheek when he was two, an omen for harsh discrimination carried out other looks disorders to direct interview in our country firstly. His mark was an angioma, a benign tumor consisting of dilated blood vessels.This research suggested that psychological suffers of looks disorders were serious. The family's encouragement and friend's urge were most important of all the social support systems.The head investigator also visits schools to tell children how unfair discrimination is, letting them touch the soft, warm tumor in which his pulse can be felt.This research suggested that educational practical activity in the elemental school and junior high school of looks disorders were first in our country and this research were watched in the foreign researchers.With the release of his autobiography, entitled "Face of Destiny", last October, the head investigator became a torch bearer for one million people in Japan with deformed faces. The head investigator and eight other people who "have lost normal faces" jointly published a book. In future this research were certainly spread all over the world.

这项研究得出的结果是，首席调查员藤井德明在两岁时开始在他的右脸颊上出现粉色圆点，这是严厉歧视的先兆，在我国首次进行了其他相貌障碍的直接采访。他的标志是血管瘤，一种由扩张的血管组成的良性肿瘤。这项研究表明，心理障碍患者的相貌障碍是严重的。家人的鼓励和朋友的鼓励是所有社会支持系统中最重要的。首席调查员还访问学校，告诉孩子们歧视是多么不公平，让他们触摸可以摸到他脉搏的柔软、温暖的肿瘤。这项研究表明，相貌障碍的小学和初中教育实践活动在我国是第一个，这项研究在国外研究人员中是第一个关注的。去年10月，随着他的自传《面对命运》的出版，首席调查员成为日本100万畸形脸孔的火炬手。这位首席调查员和其他八个失去了正常面孔的人共同出版了一本书。在未来，这项研究肯定会在世界各地推广。

项目成果

藤井 輝明: "小学2年生の「道徳の時間」に招かれて etc"運命の顔(草思社). 1巻1号. 1-9 (2003)

藤井辉明：“二年级小学生道德时间等的邀请”（草志社）第1卷第1-9期（2003年）。