Thoughts of nurses about mental care for Motor Neuron Disease patients

本研究的目的是调查运动神经元病患者的实际护理情况和护士对心理健康的看法，并探讨理想的护理方法。对20名具有运动神经元病护理经验的护士(19名女性，1名男性)进行了半结构化访谈。数据采用定性归纳法进行分析。护理经验平均(±SD)为8.1±8.07年，其中大类20个，中类65个，小类146个。大类分为“护士思考的心理护理”、“支持护士的事情”和“阻止心理护理实践的事情”。“护士思考的心理护理”包括[呼吁病人重新审视主要生活意义]，护士应做的重要事情是[帮助病人振作精神]、[减少病人痛苦]、[诊断后提供病人随访]。此外，护士认为患者的…更需要以整体的方式理解[身心有关系]，也要有[敏锐地捕捉病人的感受]的意识。“支持护士的事情”包括[设计护理以适应病人的生活方式]到[与病人和家人合作，以达到出院的共同目标]。此外，[克服护士对运动神经元病患者偏见的神奇经历]使护士能够更深刻地了解患者。“阻碍心理护理实践的事情”反映了与护理系统有关的问题或运动神经元病的独特症状，如[照顾日常生活压力]、[针对每个患者的沟通方式]和[针对运动神经元病患者的护理可能无法提供预期的结果]。此外，护士对心理护理的态度阻碍了诸如[心理护理差]、[触摸病人的心脏使护士焦虑]、[将相互信任关系作为心理护理的前提]、[幸运的是识别病人真实意图的技术]等做法。因此，这些结果表明护理系统的准备是可望的。研究还表明，开发个性化的教育支持系统对护士了解运动神经元疾病和较少解决与心理护理有关的问题具有重要意义

The purpose of this study was to investigate actual nursing care and nurses' thoughts regarding mental health in patients with motor neuron disease patients and to consider ideal methods. Semi-structured interviews were conducted with 20 nurses (19 women, 1 man) who had experienced with caring for motor neuron disease patients. Data were analyzed by qualitative induction. Mean (±SD) duration of nursing experience was 8.1 ±8.07 years.The study identified 20 large categories, 65 medium categories and 146 small categories. Large categories were classified into 3 types: "Mental care that nurses think about"; "Things that support nurses"; and "Things preventing mental care practice"."Mental care that nurses think about" comprised 【Appeal to patients to re-examine primary life meanings】, and important things nurses should perform were 【Work on patients to refresh themselves 】, 【Reduce patient suffering】, and 【Provide patient follow-up after diagnosis】. In addition, nurses think that patients … More need to be understood in a holistic manner as 【Mind and body have relationship】, and also have a sense of 【Be sensitive to catching patient feelings】."Things that support nurses" comprised 【Devise nursing care to fit the patient's way of life】 to 【Cooperate with the patient and family members to arrive at same aim for discharge from hospital】. In addition, 【Amazing experiences that overcame nurse prejudices regarding motor neuron disease patients】 empower nurses to understand patients in a more profound manner."Things preventing mental care practice" reflected problems related to nursing systems or distinctive symptoms of motor neuron disease such as 【Taking care of pressures of daily life】, 【Communication style specific to each patient】 and 【Nursing for motor neuron disease patients may not provide expected results】. Furthermore, nurse attitudes for mental care block for practices such as 【Poor mental care】, 【Touching patient's heart makes the nurse anxious】, 【Setting a relationship of mutual trust as a premise for mental care】, 【Luck of techniques to identify real intentions of patients】.These results thus suggest that the preparation of nursing systems is expected. The study also indicated that developing individualized educational support systems is important for nurses to understand motor neuron disease and to solve problems related to mental care Less