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An evaluation of health support activities at Health Centers for patients with Parkinson's disease and other neurological intractable diseases

帕金森病等神经系统疑难病患者保健中心健康支持活动评价

基本信息

批准号：
07670438
负责人：
KURODA Kenji
金额：
$ 1.6万
依托单位：
Osaka Prefecture University
依托单位国家：
日本
项目类别：
Grant-in-Aid for Scientific Research (C)
财政年份：
1995
资助国家：
日本
起止时间：
1995 至 1997
项目状态：
已结题

项目摘要

Several surveys which were conducted for this study yielded the following findings :1) The rate of patients with neurological intractable diseases (NIDs) who were registered at Health Centers (HCs) in Osaka Prefecture was 54.3 per 100,000 total population. Of these patients, 35.7% were visited by public health nurses (PHNs) during the fiscal year 1994. Of all patients with intractable diseases (IDs) visited by PHNs during the year, 74% were suffering from NIDs. On the other hand, the number of patients with NIDs accounted for only 22.5% of all patients with all IDs. PHNs are thus giving priority to supportive activities for patients with NIDs.2) A mail survey to which 645 patients with Parkinson's disease responded revealed a close relationship between a positive attitude towards the illness and participation in group work activities offered by HCs. One possible explanation of this relationship is that the group work helps generate a positive attitude in these patients.3) A home-visit survey regarding subjective QOL (quality of life) was carried out with collaboration of 85 patients with NIDs. Multiple regression analysis showed that the QOL score correlated significantly with the following variables : whether the patient tries to obtain knowledge about the disease, work situation, financial status of the household, level of ADL,and the frequency of going out of the home. It seems that creating a suitable environment through health support activities by HCs is an important factor in the improvement of QOL of patients with NIDs. 10.

本研究的几项调查结果如下：1）在大坂府保健中心（HC）登记的神经系统疑难杂症（NID）患者的比例为每10万总人口54.3人。在这些病人中，35.7%在1994财政年度期间由公共卫生护士探访。在这一年中，PHN访问的所有疑难杂症患者中，74%患有NIDS。另一方面，NIDS患者的数量仅占所有ID患者的22.5%。因此，PHN优先考虑对NIDs患者的支持活动。2）645名帕金森病患者回复的邮件调查显示，对疾病的积极态度与参与HC提供的小组活动之间存在密切关系。这种关系的一个可能的解释是，小组工作有助于在这些患者中产生积极的态度。3）对85例NIDS患者进行了关于主观生活质量（QOL）的家访调查。多元回归分析显示，患者是否尝试获取疾病知识、工作情况、家庭经济状况、日常生活活动水平、外出次数与生活质量评分呈显著相关。通过卫生保健人员的健康支持活动，创造一个适宜的环境，是提高非免疫缺陷患者生活质量的重要因素。10.