Terminal Care Nursing in Pediatric Oncology and the Development of Nursing Protocols

儿科肿瘤学的临终护理及护理方案的制定

• 批准号: 10672255
• 负责人: SAIKI-CRAIGHILL Shigeko
• 金额: $ 1.34万
• 依托单位: Tokyo Metropolitan University of Health Sciences (1999-2001)Tokai University (1998)
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Scientific Research (C)
• 财政年份: 1998
• 资助国家: 日本
• 起止时间: 1998 至 2000
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/grant/KAKENHI-PROJECT-10672255/
• 关键词: terminal care; pediatric oncology nursing; good death; nurse's role; accepting death; predicting death; 小児看護; 看護婦(士); 家族; 死のうけ入れ; ターミナル・ケア; 母親; 小児がん; 子ども

Based mainly on grounded theory analysis of interviews with 57 nurses, this study describes what kind of roles experienced pediatric nurses take with families who have children in the terminal stages of cancer. During the terminal stage, the nurses not only work to take care of a family's anxieties and uncertainties, but at the same time try to lead the family toward accepting the fact that they are losing a child and encourage them to make their decisions carefully. When a child is very close to dying, the nurses try to create a "good death" situation. They do this by making sure that all the appropriate people are at the scene, that the family members are able to have physical contact with the child, and that the setting is calm. The nurses evaluate their performance in terminal care situations on the basis of how well they were able to prepare the conditions for a "good death". They modify their concept of a "good death" based on this evaluation. In this way, they could be seen a taking the role of a stage director, molding the situation according to their concept of a "good death".

本研究主要基于对57名护士访谈的扎根理论分析，描述了经验丰富的儿科护士在癌症晚期儿童家庭中所扮演的角色。在临终阶段，护士不仅要照顾一个家庭的焦虑和不确定性，同时还要努力引导这个家庭接受他们即将失去一个孩子的事实，并鼓励他们谨慎做出决定。当一个孩子非常接近死亡，护士试图创造一个“好死”的情况。为了做到这一点，他们要确保所有合适的人都在现场，确保家庭成员能够与孩子有身体接触，并确保环境平静。护士评估自己在临终护理情况下的表现，依据是她们为“善终”准备条件的程度。他们根据这一评价修改了“善终”的概念。通过这种方式，可以看到他们扮演了舞台导演的角色，根据他们“善终”的概念来塑造局势。

项目成果

才木クレイグヒル滋子: "母親の語りから考えるターミナル期の家族への援助" 小児看護. 21(11). 1479-1483 (1998)

Shigeko Saiki Craighill：“基于母亲的叙述对临终期家庭的支持”，《儿科护理》21(11)。

才木クレイグヒル滋子: "これからの小児看護 母親の悲嘆過程からみた看護者の役割" 南江堂 筒井真優美編, 165(101-112) (1998)

Shigeko Saiki Craighill：“儿科护理的未来：从母亲悲伤过程的角度看护士的角色” Nankodo，由 Mayumi Tsutsui 编辑，165(101-112) (1998)

戈木クレイグヒル滋子: "小児がん医療におけるターミナルケアのはじまり"Quality Nursing. 6(8). 689-697 (2000)

Shigeko Craighill：“儿科癌症护理的末期护理的开始”质量护理 6(8)。

戈木クレイグヒル滋子, 渡会丹和子, 児玉千代子: "「よい看取り」の演出:ターミナル期の子どもをもつ家族へのナースの働きかけ"日本看護科学会誌. 20. 69-79 (2000)

Craighill、Shigeko Eki、Tanwako Watanai 和 Chiyoko Kodama：“为患有绝症儿童的家庭提供‘良好的临终关怀：护士对患有绝症儿童的家庭的方法’”，《日本护理科学杂志》。20. 69-79 (2000)

戈木クレイグヒル滋子 他2名: "「よい看取り」の演出:ターミナル期の子ひもともつ家族へのナースの働きかけ"日本看護科学会誌. 20(3). 69-79 (2000)

Craighill、Shigeko Eki 和其他 2 人：“提供‘良好的临终关怀’：护士对患有绝症儿童的家庭的方法”，《日本护理科学学会杂志》20(3) (2000)。