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Research for a support system for parents with a handicapped infant who had been informed of a fetal abnormality

针对被告知胎儿异常的残疾婴儿的父母的支持系统的研究

基本信息

批准号：
12672336
负责人：
HOTTA Noriko
金额：
$ 1.22万
依托单位：
Nagoya City University
依托单位国家：
日本
项目类别：
Grant-in-Aid for Scientific Research (C)
财政年份：
2000
资助国家：
日本
起止时间：
2000 至 2003
项目状态：
已结题

项目摘要

The subjects of the study were 10 mothers who had given birth to a handicapped infant after being informed during pregnancy of a fetal abnormality at A university hospital. The survey included common symptoms, pathologic grief reactions, and psychological tests (STAI/SDS). The survey was conducted by questionnaire during interviews. These interviews were held after informed, immediately after birth of the child, 6 months after birth, 1 year after birth, 1.5 years after birth, 2 years after birth, 2.5 years after birth, and 3 years after birth. The survey period was from June 119 to July 2002. We found that common symptoms and pathologic grief reactions were most common after informed, but had disappeared by 1 year after birth. The most commonly seen items after informed were feelings of anxiety and visions of the child. The score for common symptoms was higher in all periods for mothers without children. The score for pathologic grief reactions was nearly the same for mothers with children from the time after notification until 1 year after birth. Both the STAI and SDS scores were highest after notification, and lowest from 1 year until 1.5 years after birth. The STAI/SDS during the growth period of the mother in a normal pregnancy and parturition are as follows. STAI and SDS are affected by the child's malaise status, sleep, and behavior. Most mothers were troubled by confusion from the vast amount of information, but this did not affect STAI/SDS. In terms of mothers' roles in housework and childcare, STAI/SDS has been shown to be higher in proportion to the size of the mother's share in housework and childcare.

研究对象为10位母亲，她们在怀孕期间被告知胎儿异常后在A大学医院生下了一个残疾婴儿。调查包括常见症状、病理性悲伤反应和心理测试（STAI/SDS）。调查采用问卷调查的方式进行。这些访谈是在知情后、孩子出生后立即、出生后6个月、出生后1年、出生后1.5年、出生后2年、出生后2.5年和出生后3年进行的。调查期间为2002年6月119日至7月。我们发现，一般症状和病理性悲伤反应是最常见的告知后，但已消失，出生后1年。告知后最常见的项目是焦虑感和孩子的愿景。没有孩子的母亲在所有时期的常见症状评分都较高。有孩子的母亲从通知后到出生后1年的病理性悲伤反应评分几乎相同。STAI和SDS评分在通知后最高，出生后1年至1.5年最低。正常妊娠和分娩的母亲在生长期的STAI/SDS如下。STAI和SDS受儿童的不适状态，睡眠和行为的影响。大多数母亲被大量的信息所困扰，但这并不影响STAI/SDS。就母亲在家务和儿童保育方面的角色而言，STAI/SDS与母亲在家务和儿童保育方面的份额比例较高。