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A study on the construction of the support system for siblings of children with special needs.

特殊儿童兄弟姐妹支持体系构建研究

基本信息

批准号：
15330131
负责人：
KITAMURA Yayoi
金额：
$ 9.22万
依托单位：
National rehabilitation Center for Persons with Disabilities (Research Institute)
依托单位国家：
日本
项目类别：
Grant-in-Aid for Scientific Research (B)
财政年份：
2003
资助国家：
日本
起止时间：
2003 至 2006
项目状态：
已结题

来源：
https://kaken.nii.ac.jp/grant/KAKENHI-PROJECT-15330131/
关键词：
disability chronic illness autism mental retardation workshop discussion self perception 同胞家族親

项目摘要

Purpose: The purpose of this study is 1) to modify the American model of sibling support workshop for Japanese, and 2) to construct a system to carry sibling support projects in Japan.Methods: 1) A community survey was carried to know the concerns of Japanese siblings and the need of sibling support projects, 2) run workshops for siblings and evaluated the effects for participants without discussions by adult sibling facilitators and workshops with discussion by professional facilitators, 3) developed two other types of sibling support projects with two parents' groups on developmental disabilities and evaluated the effects for participants.Results: 1) Concerns by Japanese siblings are same as concerns by American and European siblings, and most mothers answered that they would like to send their children to sibling support projects, 2) Workshops without discussions increased the degree of communication between siblings and mothers on disabilities and siblings released from stressed experiences, workshops with discussions run smoothly with some modification, such as, doubled time, writing time before presentation, and small group discussions before an open discussion, 3) Summer camp of siblings with autistic children covered loneliness of siblings and provided some opportunities for participants to share faced experiences and feelings on sibling concerns.Discussion: These results suggest that 1) at least one sibling support workshop is required by Japanese parents and siblings for every city, 2) workshops for siblings are effective to decrease loneliness of siblings and increase communication opportunities between siblings and their mothers, even without discussion activities, 3 other types of sibling support projects, except workshops are expected to work effective, such as summer camps and out-going activities.

目的：本研究的目的是：1）修改美国的同胞支持工作坊模式，使其适合日本人; 2）构建一个在日本开展同胞支持项目的系统。1）进行了一项社区调查，以了解日本兄弟姐妹的担忧和兄弟姐妹支持项目的需求，2）为兄弟姐妹举办研讨会，并评估参与者的效果，而不是由成年兄弟姐妹促进者进行讨论，以及由专业促进者进行讨论的研讨会，（3）与两个发展性障碍家长小组合作开发了其他两种类型的兄弟姐妹支持项目，并对参与者的效果进行了评估。1）日本兄弟姐妹的担忧与美国和欧洲兄弟姐妹的担忧相同，大多数母亲回答说，她们愿意把孩子送到兄弟姐妹支持项目，2）没有讨论的讲习班增加了兄弟姐妹和母亲之间关于残疾和兄弟姐妹从紧张经历中释放出来的沟通程度，讨论的讲习班在进行一些修改后顺利进行，例如，加倍时间，演讲前的写作时间，3）自闭症儿童的兄弟姐妹夏令营涵盖了兄弟姐妹的孤独感，并为参与者提供了一些分享兄弟姐妹关注的经历和感受的机会。讨论：这些结果表明：1）每个城市的日本父母和兄弟姐妹至少需要一个兄弟姐妹支持讲习班，2）即使没有讨论活动，为兄弟姐妹举办的工作坊也能有效地减少兄弟姐妹的孤独感，增加兄弟姐妹与母亲之间的交流机会。3其他类型的兄弟姐妹支持项目，除了工作坊，预计也会有效，如夏令营和外出活动。