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Young migrants, chronic illness and disability: The case of African children and young people with sickle cell disease who migrate to England

年轻移民、慢性病和残疾：移居英国的患有镰状细胞病的非洲儿童和年轻人的案例

基本信息

批准号：
ES/X003515/1
负责人：
Brenda Poku
金额：
$ 29.83万
依托单位：
University of Nottingham
依托单位国家：
英国
项目类别：
Research Grant
财政年份：
2023
资助国家：
英国
起止时间：
2023 至无数据
项目状态：
未结题

来源：
https://gtr.ukri.org/projects?ref=ES%2FX003515%2F1
关键词：
Young migrants chronic illness disability

项目摘要

We understand little about the experiences of migrant children and young people who have long-standing illnesses. This is explained by assumptions suggesting that migrants are young, healthy and able-bodied and rarely use health services. This project will examine the experiences of children and young people with chronic illnesses who migrate, using African migrant children and young people with sickle cell disease in England as an example. African migrant children and young people with sickle cell disease require prompt and life-long care from a range of different services. They contribute significantly to the number of people living with sickle cell disease in the UK. Little, however, is known about their experiences. The project will explore:o how African migrants children and young people with sickle cell disease experience and navigate the UK's health and social care, educational and social systems;o how they make sense of and give meaning to their illness when in a new homeland, including how they negotiate and present their identity within their social contexts; ando the current role of the NHS, educational and third sectors in supporting African migrant children and young people with sickle cell disease.The research will explore how they experience their illness from childhood to young adulthood in a new homeland. It will also explore how health, social and educational services interact and mediate the young migrants' illness experiences. The project will present a critical account of migrant health and explore how factors such as age, gender, race, ethnicity, immigration status, pre-migration experiences and expectations, along with the host country's culture and systems, intersect and mediates the African migrant children and young people experiences of sickle cell disease. This includes exploring how they manage their illness in a new homeland. This will be achieved by speaking with African migrant children and young people with sickle cell disease and the professionals and charities who support them through individual interviews and art-based focus group discussions.The research will identify ways to improve the experiences of African migrant children and young people with sickle cell disease. This will be achieved by bringing together African migrant children and young people with sickle cell disease and sickle cell disease-focused charities to review the findings and suggest how they might inform policy and practice. Outcomes from the discussions will be used to develop resources for disseminating the research findings to the sickle cell disease communities, care and support providers, policymakers, researchers and the wider society through presentations, publications, an animation, a video, an artwork exhibition, a staged drama, and social media campaigns.

我们对长期患病的移民儿童和青年的经历知之甚少。这是因为人们假设移徙者年轻、健康、身体强壮，很少使用保健服务。该项目将研究患有慢性病的移徙儿童和青年的经历，以在英格兰患有镰状细胞病的非洲移徙儿童和青年为例。患有镰状细胞病的非洲移徙儿童和青年需要一系列不同服务的及时和终身护理。他们对英国镰状细胞病患者的数量有很大贡献。然而，人们对他们的经历知之甚少。该项目将探讨：患有镰状细胞病的非洲移民儿童和年轻人如何体验和驾驭联合王国的卫生和社会保健、教育和社会制度;他们在新的家园时如何理解自己的疾病并赋予其意义，包括他们如何在社会环境中谈判和展示自己的身份;以及国民健康保险制度目前的作用，教育和第三部门支持患有镰状细胞病的非洲移民儿童和年轻人。这项研究将探讨他们从童年到青年的疾病经历在新的家园。它还将探讨卫生、社会和教育服务如何相互作用，并调解年轻移民的疾病经历。该项目将对移徙者的健康状况进行批判性阐述，并探讨年龄、性别、种族、族裔、移民身份、移徙前的经历和期望沿着东道国的文化和制度等因素如何与非洲移徙儿童和青年的镰状细胞病经历相互交织和介导。这包括探索他们如何在新的家园管理他们的疾病。这将通过与患有镰状细胞病的非洲移民儿童和年轻人以及通过个人访谈和基于艺术的焦点小组讨论支持他们的专业人士和慈善机构进行交谈来实现。该研究将确定如何改善患有镰状细胞病的非洲移民儿童和年轻人的经历。这将通过将患有镰状细胞病的非洲移民儿童和年轻人以及以镰状细胞病为重点的慈善机构聚集在一起来实现，以审查调查结果并建议如何为政策和实践提供信息。讨论的结果将用于开发资源，通过演讲，出版物，动画，视频，艺术品展览，舞台剧和社交媒体活动，向镰状细胞病社区，护理和支持提供者，决策者，研究人员和更广泛的社会传播研究结果。