Creation and utilization of a "child-care notebook" for supporting children with congenital anomaly

制作及运用支援先天畸形儿童的「育儿笔记本」

• 批准号: 17592248
• 负责人: TSUJINO Kumiko
• 金额: $ 1.71万
• 依托单位: Yamaguchi University
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Scientific Research (C)
• 财政年份: 2005
• 资助国家: 日本
• 起止时间: 2005 至 2007
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/grant/KAKENHI-PROJECT-17592248/
• 关键词: child-care notebook; child support; congenital anomaly; genetic clinic; 母子健康手帳; 遺伝看護

Forty records of consultation (the most frequent visitor visited 20 times) were collected about mothers and families of genetic outpatients who had visited the hospital between April 2002 and January 2005. The data were analyzed and organized. All the clients consulted the doctor about the symptoms, complications, disorder, cause, treatment or prognosis on each visit each time. We have created an original "child-care notebook" in order to actually use it in the genetic clinic. It is an A4-sized loose-leaf notebook and the contents are as follows : a. emergency contact details b. Growth records of child c. Mother's page d. Medical staff's page e. Plastic pockets f. Explanation about disorder, disability, and/or examination, Information about governmental support system and educational institutions The "child-care notebook" was given to 7 mothers with Down-syndrome or malformation syndrome child after explaining the main purpose of the research asking them to write the child's behavior or questions to the doctor or nurses if possible. The "child-care notebook" was revised and completed after being utilized in the genetic clinic when they visited the doctor. It was written in by the mother at home and by nurses during and after their visits, and kept by the mother. Utilizing this notebook made it possible for the researchers to understand more about the behavior of the mother and child and to sympathize with the mother's comments. It also helped to realize the long-term psychological condition of the child. In this sense, the notebook was very productive. The "child-care notebook" plays a role as an exchange notebook between mother, nurses and doctor, and it helps for them to understand the child's development in a forward-looking manner. It is also effective to promote better understanding to the child and to deepen their love to the child.

收集2002年4月至2005年1月期间就诊的遗传门诊患者母亲及家属的40条就诊记录（最多就诊20次），并对数据进行分析和整理。所有客户每次就诊时都向医生咨询了症状、并发症、疾病、病因、治疗或预后。我们创造了一个原创的“育儿笔记本”，以便在基因诊所中实际使用它。这是一本A4大小的活页笔记本，内容如下：紧急联系方式 B.孩子的成长记录C.母亲的页面 D.医务人员页面 e.塑料袋 f.关于障碍、残疾和/或检查的说明，有关政府支持系统和教育机构的信息在解释了研究的主要目的后，向7名患有唐氏综合症或畸形综合症孩子的母亲发放了“育儿笔记本”，要求她们在可能的情况下将孩子的行为或问题写给医生或护士。 “育儿笔记本”是在基因诊所就诊时使用后修改完成的。它是由母亲在家中以及护士在探访期间和之后写下的，并由母亲保存。利用这本笔记本，研究人员可以更多地了解母亲和孩子的行为，并对母亲的言论表示同情。这也有助于了解孩子的长期心理状况。从这个意义上说，笔记本电脑的生产力非常高。 “育儿笔记本”起到了妈妈、护士、医生之间交流笔记本的作用，有助于他们前瞻性地了解孩子的发展情况。也能有效增进对孩子的了解，加深对孩子的爱。

项目成果

救急外来における子どもへのトリアージとその家族への介入

在急诊室对儿童进行分类并对其家人进行干预

• 发表时间: 2007
• 期刊: 小児看護 30(8)
• 作者: Katsuko;Tanaka;kazumi;oda;kimiyo;suehara;masako;waguri;tomoyuki;kawamura;飯野 英親;飯野 英親;岩鼻 かなみ;Skirton H;塚原 正人;村上 京子;林 久美;飯野 英親;飯野 英親;東 麻美
• 通讯作者: 東 麻美

看護師・看護学生の家系図表記技術の分析

护士及护生家谱记法技术分析

• 发表时间: 2006
• 期刊: 日本遺伝看護学会誌 4(1)
• 作者: Skirton;H;辻野 久美子;飯野 英親;村上 京子;塚原 正人;Tsukahara M;林 久美;辻野 久美子;末広 寛;飯野 秀親;飯野 秀親;村上 京子;辻野 久美子;飯野 英親
• 通讯作者: 飯野 英親

遺伝医療における看護の連携-神経・筋疾患領域の検討の要約

遗传医学的护理合作 - 神经肌肉疾病领域的研究摘要

• 发表时间: 2006
• 期刊: 日本遺伝看護学会誌 4(1)
• 作者: Skirton;H;辻野 久美子;飯野 英親;村上 京子;塚原 正人;Tsukahara M;林 久美;辻野 久美子;末広 寛;飯野 秀親;飯野 秀親;村上 京子;辻野 久美子;飯野 英親;河内 美穂子;斉藤 知子;飯野 英親
• 通讯作者: 飯野 英親

A nursing education system capable of answering the demands of genetic medical care

能够满足遗传医疗需求的护理教育体系

• 发表时间: 2006
• 作者: Murakami;K;飯野 英親;lino H.;Tsujino K;Mizoguchi M
• 通讯作者: Mizoguchi M

13 trisomy;医学大辞典

13 三体医学词典；

• 发表时间: 2006
• 作者: Tsujino;K;末広 寛;末広 寛;飯野 英親;末広 寛;末広 寛;塚原 正人;辻野 久美子;塚原 正人
• 通讯作者: 塚原 正人