Privacy of genetic discrimination and legal regulation on genetic discrimination

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With the advancement of techniques of screening human genetic profiles and widely used genetic tests which are unveiling the future health condition of the individual and the risk of future onset DNA link diseases, the so-called genetic discrimination issues in insurance settings have begun to be raised and the legal protection on the privacy of genetic information is an urgent matter to be addressed in our present society.In our research, we made several international surveys of the present legal regulations on the use of genetic information in insurance settings in the USA, Germany, and Australia, etc. Moreover, within Japan, we conducted interviews for several domestic associations and family members of genetic diseases, and also representatives of major life insurance companies. We organized symposiums and workshops in academic conferences and made presentations on the findings of our research and moreover, exchanged opinions with a variety of professionals and produced a report.