Data Disparities Supplement to Johns Hopkins Institute for Clinical and Translational Research

SARS-CoV-2冠状病毒，导致称为冠状病毒疾病2019的呼吸道疾病 （COVID-19），导致全球大流行的比例前所未有。截至2020年4月28日， 全球300万确诊COVID-19病例，其中美国超过100万例。在 此外，全球已有超过213，000例与COVID-19相关的死亡，其中包括美国的57，000例死亡 States. COVID-19大流行对种族/少数民族社区的影响不成比例， 那些处于社会经济不利地位的人。造成种族/族裔间这种不成比例影响的原因 少数群体的慢性病负担更重，使人们面临严重疾病的风险。 和死亡的COVID-19，更难获得初级和专科护理， COVID-19由于实行社交距离行为的障碍，以及 弱势群体。这一流行病对及时获得保健服务提出了前所未有的需求， 相关数据。马里兰州和包括哥伦比亚特区在内的周边地区很幸运， 有一个运作良好的健康信息交换中心CRISP。在COVID-19大流行期间，CRISP数据 有可能在跟踪和了解护理和结果方面发挥重要作用， COVID-19感染该资源在COVID登记中是独一无二的，因为它包括所有健康 在一个地理区域的整个人口中发生的事件和发现，无论卫生服务在哪里， 交付。因此，它非常适合解决健康差距问题。具体目标是 行政补充是（1）开发CRISP数据资源，作为一个独特的，基于人口的COVID- 高度安全的约翰霍普金斯精准医学分析平台上的19项登记研究，以及（2）评估 按种族、社区和社会经济地位划分的COVID-19护理和结果， 可以用来减少新出现的差距。

The SARS-CoV-2 coronavirus, which causes a respiratory illness known as Coronavirus Disease 2019 (COVID-19), has caused a global pandemic of unprecedented proportion. As of April 28, 2020, there were over 3 million confirmed COVID-19 cases worldwide, including over 1 million cases within the United States. In addition, there has been over 213,000 COVID-19 related deaths globally, including 57,000 deaths in the United States. The COVID-19 pandemic is disproportionately impacting racial/ethnic minority communities, as well as those who face socioeconomic disadvantage. Reasons for this disproportionate impact among racial/ethnic minorities include a greater burden of the chronic health conditions that place persons at risk of severe disease and death from COVID-19, poorer access to primary and specialty care, an increased risk of contracting COVID-19 due to barriers to practicing social distancing behaviors, and shortages of testing resources in disadvantaged communities. This pandemic has presented unprecedented needs for timely access to health- related data. The State of Maryland and surrounding regions including the District of Columbia are fortunate to have a well-functioning health information exchange, CRISP. During the COVID-19 pandemic, CRISP data have the potential to serve an essential function in tracking and understanding the care and outcomes of COVID-19 infections. This resource would be unique among COVID registries in that it includes all health events and findings among the entire population of a geographic area, regardless where a health service was delivered. As such, it is ideally suited to address questions of health disparities. The Specific Aims of this administrative supplement are to (1) develop the CRISP data resource as a unique, population-based COVID- 19 registry on the highly secure Johns Hopkins Precision Medicine Analytics Platform, and (2) evaluate COVID-19 care and outcomes by race, neighborhood and socioeconomic status such that targeted strategies can be deployed to reduce emerging disparities.