Data Disparities Supplement to Johns Hopkins Institute for Clinical and Translational Research

SARS-CoV-2冠状病毒，导致一种被称为冠状病毒病2019年的呼吸道疾病 (新冠肺炎)，已经造成了一场前所未有的全球大流行。截至2020年4月28日，有超过 全球有300万例新冠肺炎确诊病例，其中包括美国境内的100多万例。在……里面 此外，全球已有超过213,000人死于新冠肺炎，其中包括美国的57,000人 各州。新冠肺炎大流行对种族/少数民族社区以及 那些面临社会经济劣势的人。种族/民族之间产生这种不成比例影响的原因 少数群体包括将人们置于严重疾病风险中的慢性健康状况的更大负担 和死于新冠肺炎，获得初级和专科护理的机会越少，感染的风险就越高 新冠肺炎由于实践社交疏远行为的障碍，以及测试资源的短缺 弱势群体。这场大流行对及时获得卫生保健提出了前所未有的需求。 相关数据。马里兰州和包括哥伦比亚特区在内的周边地区幸运地 拥有运转良好的健康信息交流，干净利落。在新冠肺炎大流行期间，清晰的数据 有可能在跟踪和了解患者的护理和结果方面发挥重要作用 新冠肺炎感染。该资源在COVID注册中心中是唯一的，因为它包括所有健康状况 在一个地理区域的所有人口中发生的事件和调查结果，无论医疗服务在哪里 送来了。因此，它非常适合于解决健康差距问题。这样做的具体目的是 行政补充是(1)将CRISP数据资源开发为独特的、基于人口的COVID- 19在高度安全的约翰霍普金斯精密医学分析平台上注册，以及(2)评估 根据种族、社区和社会经济地位对新冠肺炎的关怀和成果，从而制定有针对性的战略 可以用来减少新出现的差距。

The SARS-CoV-2 coronavirus, which causes a respiratory illness known as Coronavirus Disease 2019 (COVID-19), has caused a global pandemic of unprecedented proportion. As of April 28, 2020, there were over 3 million confirmed COVID-19 cases worldwide, including over 1 million cases within the United States. In addition, there has been over 213,000 COVID-19 related deaths globally, including 57,000 deaths in the United States. The COVID-19 pandemic is disproportionately impacting racial/ethnic minority communities, as well as those who face socioeconomic disadvantage. Reasons for this disproportionate impact among racial/ethnic minorities include a greater burden of the chronic health conditions that place persons at risk of severe disease and death from COVID-19, poorer access to primary and specialty care, an increased risk of contracting COVID-19 due to barriers to practicing social distancing behaviors, and shortages of testing resources in disadvantaged communities. This pandemic has presented unprecedented needs for timely access to health- related data. The State of Maryland and surrounding regions including the District of Columbia are fortunate to have a well-functioning health information exchange, CRISP. During the COVID-19 pandemic, CRISP data have the potential to serve an essential function in tracking and understanding the care and outcomes of COVID-19 infections. This resource would be unique among COVID registries in that it includes all health events and findings among the entire population of a geographic area, regardless where a health service was delivered. As such, it is ideally suited to address questions of health disparities. The Specific Aims of this administrative supplement are to (1) develop the CRISP data resource as a unique, population-based COVID- 19 registry on the highly secure Johns Hopkins Precision Medicine Analytics Platform, and (2) evaluate COVID-19 care and outcomes by race, neighborhood and socioeconomic status such that targeted strategies can be deployed to reduce emerging disparities.