Homebound with Dementia in the Context of COVID-19

新冠肺炎语境中的痴呆症患者回家 摘要/摘要 痴呆症患者在社区的家中生活多年。即使这个社区是 对护理场所的压倒性偏好，在社区中与痴呆症患者生活的经历是具有挑战性的 为病人和他们的照顾者家属。在现有的父母助学金中，我们研究了回家的影响 使用纵向的、具有国家代表性的国民健康计划对痴呆患者的生活体验 和老龄化趋势研究以及与医疗保险索赔相关的国家照顾者研究， 美国人口普查和其他地理数据。在这份增刊中，我们考察了新冠肺炎对回家的影响。 在疫情的震中纽约市，患有痴呆症的成年人和他们的照顾家人。vbl.使用 在西奈山卫生系统内常规收集的数据，我们将检查护理提供的变化 纽约新冠肺炎爆发期间留在家中的患者，比较留在家中的临终关怀经验 患者和照顾者在新冠肺炎大流行之前、期间和之后，并对 新冠肺炎期间居家痴呆患者的护理中断。总而言之，这个项目将对 检视痴呆症患者的生活体验，加深对他们生活体验的理解 在这场大流行期间获得护理。新冠肺炎发病前，宅在家中的痴呆症老年人 面临社会孤立和获得医疗保健的常规挑战。患者高度依赖家人 1在这一大流行病之后，面临着前所未有的巨大挑战 为这些人和他们的照顾者提供支持。拟议的研究将允许第一次 记录在纽约新冠肺炎感染高峰期之前、期间和之后的回家经历 并将为新的指导方针和应急准备计划的研究奠定基础 社区痴呆症患者的适应和与社区组织的伙伴关系 以及照顾他们的家人。

Homebound with Dementia in the Context of COVID-19 Summary/Abstract Individuals with dementia live for many years at home in the community. Even though the community is the overwhelming preference for site of care, the experience of living with dementia in the community is challenging for patients and their caregiving families. In the existing parent grant, we examine how being homebound impacts the lived experience of individuals with dementia using the longitudinal, nationally representative National Health and Aging Trends Study and the companion National Study of Caregivers with linkages to Medicare claims, the U.S Census, and other geographic data. In this supplement, we examine the impact of COVID-19 on homebound adults with dementia and their caregiving families in the epicenter of the pandemic, New York City. Using routinely collected data within the Mount Sinai Health System, we will examine change in care delivery for homebound patients during COVID-19 outbreak in NYC, compare end-of-life care experiences for homebound patients and caregivers before, during, and after the COVID-19 pandemic, and conduct an in-depth analysis of care disruptions for homebound patients with dementia during COVID-19. In summary, this project will critically enhance our understanding of the lived experience of patients with dementia by examining their experience accessing care throughout this pandemic. Prior to the onset of COVID-19, homebound older adults with dementia faced social isolation and routine challenges to accessing healthcare. Patients are highly reliant on family caregivers for daily support.1 In the wake of this pandemic, there are tremendous and unprecedented challenges for these individuals and their caregivers who support them. The proposed study will allow for the first documentation of the homebound experience before, during, and after the peak of COVID-19 infections in New York City and will set the stage for new guidelines and research into emergency preparedness, program adaptations and partnerships with community organizations for persons living with dementia in the community and their caregiving families.