Implementation and Implications of Sickle Cell Trait Screening in the NCAA

镰状细胞性状筛查在 NCAA 中的实施及其意义

• 批准号: 10166358
• 负责人: CHARMAINE DAWN MARIE ROYAL
• 金额: $ 9.33万
• 依托单位: DUKE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-16 至 2023-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10166358
• 关键词: Address; Adolescent; Adopted; Adult; Affect; Appointment; Athletic; Attitude; Behavior; Belief; Cessation of life; Characteristics; Child; Communities; Data; Decision Making; Education; Effectiveness; Gender; Genetic Counseling; Genetic Screening; Health; Health behavior; Intervention; Interview; Investigation; Knowledge; Modification; Motivation; Nature; Parents; Play; Policies; Population; Predictive Factor; Process; Public Health; Race; Recommendation; Reporting; Research Personnel; Risk; Role; Sickle Cell; Sickle Cell Trait; Socioeconomic Status; Source; Sports; Structure; Surveys; Testing; Training; Trust; Variant; base; college; experience; genetic approach; genetic testing; health belief; improved; insight; parent grant; parental influence; parental involvement; parental role; screening; screening guidelines; screening participation; social; waiver

ABSTRACT The proposed project seeks to better understand how parents are involved in the implementation of the NCAA sickle cell trait screening process and their role in recommending risk-reducing health behaviors to their children who are NCAA athletes. To explore these objectives, researchers will collect survey and semi- structured interview data from NCAA athletes and their parents to determine the magnitude and nature of parental influence on this process and whether parental factors predict differences in this involvement. Additionally, this study will examine whether parents of NCAA athletes who have sickle cell trait provide health-related guidance, the nature and rationale for these health messages, and the source of this information. More broadly, the results will identify opportunities for health policymakers and researchers to adapt educational efforts to account for the role of parents in genetic screening and health decision-making in healthy, late adolescent populations.

摘要 拟议的项目旨在更好地了解家长如何参与NCAA的实施 镰状细胞性状筛选过程及其在向他们推荐降低风险的健康行为中的作用 孩子们是NCAA运动员。为了探索这些目标，研究人员将收集调查和半- 来自NCAA运动员及其父母的结构化访谈数据，以确定 父母对这一过程的影响，以及父母因素是否预测这种参与的差异。 此外，这项研究将检查是否父母的NCAA运动员谁有镰状细胞性状提供 与健康相关的指导、这些健康信息的性质和原理以及这些信息的来源。 更广泛地说，研究结果将为卫生政策制定者和研究人员确定适应的机会 开展教育工作，说明父母在遗传筛查和健康决策中的作用， 健康的晚期青少年群体