Recruitment and Engagement Core

招聘和参与核心

• 批准号: 10172082
• 负责人: KA'IMI ALOHILANI SINCLAIR
• 金额: $ 58.88万
• 依托单位: WASHINGTON STATE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-01 至 2026-04-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10172082
• 关键词: Address; Alaska Native; Alzheimer' s Disease; Alzheimer' s disease related dementia; American Indians; Arizona; Award; Awareness; Brain; Collaborations; Collection; Communities; Community Participation; Community Services; Complement; Congresses; Data; Data Collection; Disputes; Educational workshop; Employment; Ensure; Future; General Population; Genetic Research; Goals; Havasupai; Health; Hostility; Information Dissemination; Institution; Institutional Review Boards; Intervention; Interviewer; Knowledge; Life Expectancy; Litigation; Mass Media; Methods; Modeling; Monitor; National Institute on Aging; Native Hawaiian; Native-Born; Neighborhood Health Center; Outcome; Ownership; Pacific Island Americans; Perception; Persons; Population; Positioning Attribute; Readiness; Recommendation; Registries; Remunerations; Reporting; Research; Research Personnel; Research Project Grants; Resolution; Resources; Site; Stigmatization; Surveys; Time; Tissue Sample; Training; Tribes; United States National Institutes of Health; Universities; Work; aged; career; community based participatory research; design; expectation; health disparity populations; informant; innovation; instrument; interest; meetings; member; native elder; neglect; novel; outreach; participant retention; programs; recruit; research data dissemination; research study; skill acquisition; tribal member; webinar

RECRUITMENT AND ENGAGEMENT CORE: ABSTRACT Many American Indian, Alaska Native (AI/AN), and Native Hawaiian and Pacific Islander (NHPI) communities view academic research with skepticism, mistrust, or even hostility, in part because research has historically been done in or on communities rather than with community participation. As a result, community-informed participatory approaches have become the model of choice for research with AI/ANs and NHPIs, because their core values include equitable distribution of power and resources among partners and mutual respect for the knowledge that partners offer. In 2013, the National Institute on Aging convened a workshop to articulate goals for research on Alzheimer’s disease and related dementias as part of the National Plan to Address Alzheimer's Disease. A priority was the inclusion of disparity populations in research. However, AI/ANs and NHPIs have been largely neglected by this work, despite striking increases in life expectancy among Native elders. For example, the 32 current Alzheimer’s Disease Centers have recruited only 110 AI/ANs and 19 NHPIs in the last 7 years (average of 1 person every 2 years per center), despite existing recommendations to increase diversity. The Recruitment and Engagement Core will apply strategies recommended by the National Institutes on Aging for recruitment and retention in Alzheimer’s disease and related dementias (ADRD) research,17 with a commitment to innovative as well as traditional methods to engage communities. These strategies include a network of 8 Satellite Centers led by AI/AN and NHPI investigators representing a diverse cross-section of academic and community partners, which will extend the national impact of our work beyond our Research Projects. These Centers will assess research readiness and through novel “Brain Train” hands-on workshops, establish an IRB-approved registry of AI/ANs and NHPIs who wish to participate in ADRD research. Our Specific Aims are to: 1) Monitor and evaluate recruitment and retention in Research Projects by applying innovative strategies, and identifying best practices for ADRD outreach and engagement; 2) Assess community research readiness and position AI/AN and NHPI sites for future ADRD studies through a network of Satellite Centers and “Brain Train” ADRD workshops; 3) Build an IRB-approved research and information registry of AI/ANs and NHPIs interested in ADRD research; and 4) Create educational and recruitment materials to increase awareness of ADRD for use by the Research Projects in local communities and national venues. This Core will use strategies designed to stoke interest in research and treatment advances, both in communities participating in the Research Projects and in others and ensure stakeholder involvement in biospecimen collection and dissemination of results. The AI/AN population is growing 3 times faster than the US general population, such that the number of AI/ANs aged 65+ is expected to triple by 2050, while the number of those aged 85+ will increase 7-fold.19 Corresponding increases are expected for NHPIs. Thus it is imperative to engage the rapidly burgeoning population of Native elders in ADRD research.

招聘和参与核心：摘要 许多美洲印第安人、阿拉斯加原住民 (AI/AN) 以及夏威夷原住民和太平洋岛民 (NHPI) 社区 以怀疑、不信任甚至敌意的态度看待学术研究，部分原因是研究历史上 是在社区内或社区上完成的，而不是在社区参与下完成的。结果，社区知情 参与式方法已成为 AI/AN 和 NHPI 研究的首选模型，因为它们 核心价值观包括在合作伙伴之间公平分配权力和资源以及相互尊重 合作伙伴提供的知识。 2013年，国家老龄化研究所召开了一次研讨会来阐明目标 作为国家应对阿尔茨海默病计划的一部分，对阿尔茨海默病和相关痴呆症进行研究 疾病。一个优先事项是将差异人群纳入研究。然而，AI/AN 和 NHPI 已经 尽管土著老年人的预期寿命显着增加，但这项工作在很大程度上被忽视了。为了 例如，目前 32 个阿尔茨海默病中心去年仅招募了 110 名 AI/AN 和 19 名 NHPI 尽管现有建议增加多样性，但仍持续 7 年（每个中心平均每 2 年 1 人）。 招聘和参与核心将应用国家老龄化研究所推荐的策略 用于阿尔茨海默氏病和相关痴呆症 (ADRD) 研究的招募和保留，17 致力于创新和传统方法来吸引社区。这些策略包括 由 AI/AN 和 NHPI 研究人员领导的 8 个卫星中心组成的网络，代表了不同领域的 学术和社区合作伙伴，这将把我们工作的全国影响力扩大到我们的研究之外 项目。这些中心将评估研究准备情况并通过新颖的“大脑训练”实践研讨会， 为希望参与 ADRD 研究的 AI/AN 和 NHPI 建立经 IRB 批准的登记册。我们的具体 目标是： 1) 通过应用创新来监控和评估研究项目的招募和保留 战略，并确定 ADRD 外展和参与的最佳实践； 2) 评估社区研究 通过卫星中心和 NHPI 网络为未来的 ADRD 研究做好准备和定位 “人才培养”ADRD研讨会； 3) 建立一个经 IRB 批准的 AI/AN 和 NHPI 的研究和信息登记册 对 ADRD 研究感兴趣； 4) 创建教育和招聘材料以提高人们的认识 ADRD 供当地社区和国家场馆的研究项目使用。该核心将使用策略 旨在激发参与研究的社区对研究和治疗进展的兴趣 项目和其他项目，并确保利益相关者参与生物样本的收集和传播 结果。 AI/AN 人口的增长速度是美国总人口的 3 倍，因此 预计到 2050 年，65 岁以上的 AI/AN 人数将增加两倍，而 85 岁以上的人数将增加 7 倍。 19 NHPI 预计也会相应增加。因此，必须与迅速发展的 ADRD 研究中的土著老年人群体。