Improving Child Health and Healthcare through Dissemination and Implementation of Pediatric Quality Measures: Adapting the Child Clinician and Group CAHPS Survey for Pediatric Telemedicine Visits

通过传播和实施儿科质量措施改善儿童健康和医疗保健：调整儿童临床医生和团体 CAHPS 调查以进行儿科远程医疗就诊

• 批准号: 10175492
• 负责人: Sara Louise Toomey
• 金额: $ 67.43万
• 依托单位: BOSTON CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-09-30 至 2022-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10175492
• 关键词: Improving; Child; Health; Healthcare; through

PROJECT SUMMARY/ABSTRACT Through the proposed work, we aim to produce a valid and reliable parent-reported Child Clinician and Group Consumer Assessment of Healthcare Providers and Systems (Child CG CAHPS) Telemedicine Survey that will have great potential to increase the patient-centeredness of care, improve experiences of care and health outcomes, and reduce disparities for pediatric patients and their families. Telemedicine, now being adopted at an unprecedented rate due to COVID-19, has become, and will remain, a mainstay of the care we provide. This survey will allow us to measure a critical component of the quality of telemedicine that will highlight variation in performance and provide targets for improvement which are essential for providing high quality care. In the formative phase of our work, we will gather input on telemedicine from a variety of stakeholders, including interviews with academic, clinical, and QI experts, public comment through a federal register notice, and 8 focus groups with parents and adolescents (13-17 years old) from around the United States (US) in English and Spanish. We will use key stakeholder interviews and virtual focus groups to gain novel insights into telemedicine. Using what we learn from our formative work, we will develop a draft survey instrument. We will then conduct cognitive interviews with parents in English and Spanish from around the US to assess whether items are understandable and meaningful to respondents. We will revise the survey instrument before pilot testing it in three clinics. After analyzing results from the pilot, we will revise the draft survey and conduct a national field test in 30 US clinics. The Child CG CAHPS Telemedicine Survey will be administered by survey vendors on behalf of participating clinics. We will analyze data from the national field test to assess the validity, reliability, feasibility, and usability of our survey. We will also conduct end-user testing with parents from around the US in English and Spanish to evaluate the understandability of our measure labels and concepts before finalizing the survey instrument. Our final products will include a valid and reliable Child CG CAHPS Telemedicine Survey for use in the pediatric clinic setting. The development of such a survey is critical for continuing to assess the quality of pediatric healthcare via the patient and family experience of care, for assessing how telemedicine may contribute to the narrowing or widening of disparities, and for evaluating practice and system performance.

项目摘要/摘要 通过拟议的工作，我们的目标是产生一个有效和可靠的父母报告的儿童临床医生和群体 消费者对医疗保健提供者和系统的评估(儿童CG CAHPS)远程医疗调查将 有巨大的潜力来提高以病人为中心的护理，改善护理和健康的体验 结果，减少儿科患者及其家属之间的差距。远程医疗，现已在 由于新冠肺炎，我们已经并将继续以前所未有的速度成为我们提供的护理的中流砥柱。 这项调查将使我们能够衡量远程医疗质量的一个关键组成部分，这将突出 性能差异，并提供对提供高质量至关重要的改进目标 关心。在我们工作的形成阶段，我们将从各种利益攸关方那里收集关于远程医疗的意见， 包括对学术、临床和QI专家的采访，通过联邦注册通知的公众评论， 和8个焦点小组，由来自美国各地的父母和青少年(13-17岁)组成 英语和西班牙语。我们将使用关键利益相关者访谈和虚拟焦点小组来获得新的见解 变成了远程医疗。利用我们从形成性工作中学到的东西，我们将制定一份调查文书草案。我们 然后将对来自美国各地的英语和西班牙语家长进行认知访谈，以评估 项目对受访者来说是否易懂和有意义。我们将在此之前修改调查工具。 在三家诊所进行了试点测试。在分析试验结果后，我们将修订调查草案，并进行 在美国30家诊所进行了全国现场测试。儿童CG CAHPS远程医疗调查将以调查方式进行 供应商代表参与的诊所。我们将分析全国现场测试的数据来评估其有效性， 我们调查的可靠性、可行性和可用性。我们还将与家长一起进行最终用户测试，从 以英语和西班牙语在美国各地评估我们的测量标签和概念的可理解性 在最终确定调查工具之前。我们的最终产品将包括有效和可靠的儿童CG CAHPS 用于儿科临床环境的远程医疗调查。开展这样一项调查对于 继续通过患者和家庭的护理体验评估儿科医疗保健的质量， 评估远程医疗如何有助于缩小或扩大差距，并评估 实践和系统性能。

项目成果

Adjusting for Social Risk Factors in Pediatric Quality Measures: Adding to the Evidence Base.

• DOI: 10.1016/j.acap.2021.09.023
• 发表时间: 2022-04
• 期刊: ACADEMIC PEDIATRICS
• 影响因子: 3.1
• 作者: Bucholz, Emily M;Toomey, Sara L;McCulloch, Charles E;Bardach, Naomi
• 通讯作者: Bardach, Naomi

Care Quality and Spending Among Commercially Insured Children With Disabilities.

商业保险残疾儿童的护理质量和支出。

• DOI: 10.1016/j.acap.2018.06.004
• 发表时间: 2019
• 期刊: Academic pediatrics
• 影响因子: 3.1
• 作者: Chien,AlynaT;Toomey,SaraL;Kuo,DennisZ;VanCleave,Jeanne;Houtrow,AmyJ;Okumura,MegumiJ;Westfall,MatthewY;Petty,CarterR;Quinn,JessicaA;Kuhlthau,KarenA;Schuster,MarkA
• 通讯作者: Schuster,MarkA

Racial, Ethnic, and Socioeconomic Disparities in Patient Safety Events for Hospitalized Children.

• DOI: 10.1542/hpeds.2018-0131
• 发表时间: 2019-01-01
• 期刊: Hospital pediatrics
• 作者: Stockwell, David C;Landrigan, Christopher P;Schuster, Mark A
• 通讯作者: Schuster, Mark A

Impairment Types and Combinations Among Adolescents and Young Adults with Disabilities: Colorado 2014-2018.

青少年和年轻残疾人的损伤类型和组合：科罗拉多州 2014-2018 年。

• DOI: 10.1016/j.acap.2023.10.010
• 发表时间: 2024
• 期刊: Academic pediatrics
• 影响因子: 3.1
• 作者: Chien,AlynaT;Spence,SarahJ;Okumura,MegumiJ;Lu,Sifan;Chan,ChristinaH;Houtrow,AmyJ;Kuo,DennisZ;VanCleave,JeanneM;Shanske,SusanA;Schuster,MarkA;Kuhlthau,KarenA;Toomey,SaraL
• 通讯作者: Toomey,SaraL

Potential Impact of Initial Clinical Data on Adjustment of Pediatric Readmission Rates.

初始临床数据对儿科再入院率调整的潜在影响。

• DOI: 10.1016/j.acap.2018.09.006
• 发表时间: 2019
• 期刊: Academic pediatrics
• 影响因子: 3.1
• 作者: Nakamura,MariM;Toomey,SaraL;Zaslavsky,AlanM;Petty,CarterR;Lin,Chen;Savova,GuerganaK;Rose,Sherri;Brittan,MarkS;Lin,JodyL;Bryant,MariaC;Ashrafzadeh,Sepideh;Schuster,MarkA
• 通讯作者: Schuster,MarkA