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Pregnancy Outcomes and Experiences among Deaf and Hard of Hearing Women

聋哑妇女的怀孕结果和经历

基本信息

批准号：
10178056
负责人：
MICHAEL M MCKEE
金额：
$ 54.08万
依托单位：
BRANDEIS UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2017
资助国家：
美国
起止时间：
2017-09-11 至 2024-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10178056
关键词：
1 year old Address Americans with Disabilities Act Birth Caring Childbirth Communication Data Databases Development Emergency Situation Foundations Future Goals Health Health Care Costs Health Personnel Health Professional Health Services Healthcare Healthy People 2020 Hospitalization Incidence Individual Infant Infant Health Inpatients Intervention Interview Knowledge Length of Stay Life Link Low Birth Weight Infant Massachusetts Methods Mothers Outcome Perinatal Perinatal Care Postpartum Period Pregnancy Pregnancy Complications Pregnancy Outcome Premature Birth Prenatal care Public Health Recommendation Reproductive Health Research Research Personnel Risk Sampling Sign Language Surveys Testing Time United States Dept. of Health and Human Services Woman Women&apos s Health adverse birth outcomes adverse pregnancy outcome care costs care providers cost deaf disability disparity elimination experience hard of hearing health care service health care service utilization health care settings health service use improved improved outcome infant outcome maternal outcome perinatal health population based pregnancy health pregnant reproductive response women with disabilities

项目摘要

Women who are deaf and hard of hearing (DHH) experience significant barriers to appropriate reproductive health care services and health information. Specifically, the lack of effective communication, such as sign language interpreters, hinders access to reproductive health care services and information for DHH women. While women who are DHH are equally likely to be pregnant as women with other disabilities and women without disabilities, there is almost no information and research about their pregnancy experiences, maternal and birth outcomes, and associated healthcare costs. Preliminary findings from the investigator team demonstrate that DHH women are at substantial risk for adverse pregnancy outcomes. Efforts to improve their pregnancy care and experiences while reducing costs require a definitive assessment of these women's pregnancy risks and outcomes. The overarching goal of this study is to use a mixed- methods approach to understand pregnancy experiences, maternal and birth outcomes, related health care costs, and unmet perinatal health care needs of DHH women and their infants. The specific aims of this study are: 1) Compare pregnancy and childbirth complications, outcomes, and inpatient costs among DHH and non- DHH women using nationally-representative 2008-13 Healthcare Cost and Utilization Project Nationwide Inpatient Sample data; 2) Examine longitudinal health outcomes and healthcare utilization and costs of DHH women around the time of their pregnancy and for their infants (up to 1 year of age) compared to other women using linked data from the Massachusetts Pregnancy to Early Life Longitudinal – All Payer Claims Database; and 3) Identify unmet needs and barriers to pregnancy and perinatal care for DHH women through (a) interviews with DHH mothers, (b) a national survey of the unmet needs and barriers to pregnancy and perinatal care of DHH mothers who have given birth in the last 5 years, and (c) interviews with clinicians who provide their health care. This information will be used to generate practice recommendations to improve the perinatal health of DHH women and their infants. Our study will lead to a first-ever systematic understanding of pregnancy and infant health outcomes and pregnancy care costs for DHH women, thus establishing a foundation for development and testing of future interventions to improve outcomes. This study will fill a critical knowledge gap in the understanding of the pregnancy-related experiences among DHH women before, during and after pregnancy.

失聪和听力困难的妇女在获得适当的保健服务方面遇到重大障碍，生殖保健服务和健康信息。具体而言，缺乏有效沟通，例如手语翻译，妨碍获得生殖保健服务和信息， DHH女性患有DHH的妇女与患有其他残疾的妇女一样有可能怀孕，和无残疾的妇女，几乎没有关于她们怀孕的信息和研究。经验，孕产妇和分娩结果，以及相关的医疗保健费用。初步调查结果显示，研究小组证明DHH妇女有很大风险发生不良妊娠结局。在降低成本的同时改善她们的孕期护理和体验的努力需要明确的评估这些妇女的怀孕风险和结果。这项研究的主要目标是使用混合- 方法了解怀孕经历、孕产妇和分娩结局、相关保健的方法卫生部妇女及其婴儿的围产期保健需求得不到满足。本研究的具体目的比较DHH和非DHH患者的妊娠和分娩并发症、结局和住院费用。 2008- 2013年全国保健费用和利用项目住院患者样本数据; 2）检查DHH的纵向健康结果和医疗保健利用率和成本与其他妇女相比，怀孕前后的妇女及其婴儿（1岁以下）使用来自马萨诸塞州怀孕到生命早期纵向-所有付款人索赔数据库的链接数据; 通过以下方式查明卫生和家庭部妇女在怀孕和围产期保健方面未得到满足的需求和障碍：与卫生部母亲进行访谈，（B）对未满足的需求和怀孕及围产期障碍进行全国调查，（c）与提供保健服务的临床医生进行访谈，他们的医疗保健。这些信息将用于产生实践建议，以改善围产期 DHH妇女及其婴儿的健康。我们的研究将导致有史以来第一次系统地了解卫生部妇女的怀孕和婴儿健康结果以及孕期保健费用，从而建立了一个为制定和测试未来干预措施以改善成果奠定基础。这项研究将填补一个关键的卫生部妇女在怀孕前、怀孕期间和怀孕后对怀孕相关经历的理解存在知识差距。以及怀孕后。

项目成果

期刊论文数量（7）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Postpartum Hospital Readmissions Among Massachusetts Women Who are Deaf or Hard of Hearing.

马萨诸塞州聋哑或听力障碍妇女产后再次入院的情况。

DOI：
10.1089/jwh.2022.0068
发表时间：
2023
期刊：
Journal of women's health (2002)
影响因子：
0
作者：
McKee,KimberlyS;Akobirshoev,Ilhom;McKee,Michael;Li,FrankS;Mitra,Monika
通讯作者：
Mitra,Monika

Pregnancy and Neonatal Outcomes Among Deaf and Hard of Hearing Women: Results From Nationally Representative Data.

DOI：
10.1016/j.whi.2021.03.005
发表时间：
2021-09
期刊：
Women's health issues : official publication of the Jacobs Institute of Women's Health
影响因子：
0
作者：
Mitra M;McKee MM;Akobirshoev I;Ritter GA;Valentine AM
通讯作者：
Valentine AM

Health Literacy and Difficulty Accessing Information About the COVID-19 Pandemic Among Parents Who Are Deaf and Hard-of-Hearing.

健康素养和难以访问有关聋哑和听力障碍的父母中有关Covid-19的大流行的信息。