HCM Strategists proposal for: All of Us Research Program Engagement and Retention Innovators (OT2)
HCM Strategists proposal for: All of Us Research Program Engagement and Retention Innovators (OT2)
批准号:
10210467
负责人:
Ronnie TEPP
金额:
$1063.14万
依托单位:
依托单位国家:
美国
项目类别:
财政年份:
2019
资助国家:
美国
项目状态:
已结题
起止时间:
2019-09-01 至 2024-06-30
关键词:
Active LearningAll of Us Research ProgramAreaAwarenessChurchCollectionCommunicationCommunitiesCountryCultural DiversityDataEcosystemEnrollmentFestivalFunding OpportunitiesGoalsHealthIncubatorsIndividualInfrastructureKnowledgeMeasurementMinorityNeighborhoodsOutcomeParticipantPhasePlayProcessProviderResearchResearch PersonnelStructureTimeTrainingTrustVisionWorkbasecollegedesigndigitalexperienceimprovedinnovationlearning strategymemberprogramsresponsesymposiumtool
中文摘要
为我们所有人的研究计划建立一个参与者社区,
我们国家的多样性,并让他们参与十年或更长时间,
需要有目的的精确交战
由于该计划已经建立了一个基础设施,以登记参与者,收集数据,管理信息,并促进物理
HCM从一开始就是我们的重要合作伙伴,致力于生物测量和生物样本采集(PM&B)。我们已经建立
一个强大的参与基础设施,以接触,教育和激励来自社区的个人,
历史上在研究中代表性不足(UBR)参与该计划。
我们的参与方法以最佳实践为基础,并以有影响力的参与
要求你在人们所在的地方与他们见面--不仅是他们生活、工作和娱乐的地方,而且是他们所在的地方
沿着他们的订婚之旅。这一旅程始于意识,走向登记,并持续滋养
参与我们所有人的研究计划。为了与潜在参与者进行持续、有效的互动,
我们与关键影响者建立了基于信任、透明度和双向沟通的关系,
我们所有人研究计划的核心价值观相同。
我们的成就。利用了与主要社区的深厚关系,并使社区参与其中
用于为多个受众设计、开发和交付工具和体验的方法。活动
并跟踪结果以通知迭代过程以提高效率。影响力和规模
通过与拥有基础设施的国家组织建立伙伴关系,实现方案的本地化。通过
我们值得信赖的合作伙伴关系,我们已经把我们所有的研究计划,以社区,大学校园,
教堂、专业会议、节日和其他潜在参与者生活、工作和娱乐的场所。
HCM已经建立,培育和参与了1,214个组织的全国网络。我们
由于与这些组织的关系,其中902个组织至少进行了一次学习
关于我们所有人的活动我们创造了机会、工具和培训,
这些组织采取下一步行动,与他们的社区参与至少一项活动,
激活率为46.7%
我们要去的地方。在未来五年内,这一基础设施将得到扩大,以提高人们对
我们所有人,鼓励个人注册,与参与者互动,让他们在十年或更长时间内保持联系,
培育一个渴望使用数据的研究人员生态系统。业务约定的各个组成部分
基础设施将被安置在新的参与创新网络(网络)中,并由新的
Engagement Incubator(EI). EI将提供一个社区参与结构,
和参与式参与方法,为多种受众开发体验,
在各种环境中提供,这些环境是可复制和可扩展的。最佳做法将提高效率,
冲击计划数据和指标将用于制定和优化我们的战略,随着时间的推移,
将与关键里程碑保持一致。
HCM由社区,提供商,多元文化和数字参与方面的国家领先专家组成,
as experiential经验learning学习.我们已经扩大了我们的团队,以应对下一阶段参与工作的挑战
并带来了新的团队成员,包括:在线互动和概念理论,以扩大我们的能力,
在各种平台上开发一系列数字体验;以及全国少数民族质量论坛(NMQF)
把关键的召集能力和接触到少数民族研究界。
我们迄今为止的活动的影响,以及我们对未来五年参与的愿景,将使该计划
在实现其雄心勃勃的目标的道路上,同时忠实于其核心价值观,并使研究能够改善
健康结果的个人和社区一直在历史上代表性不足的研究。
HCM很高兴提交此提案,以响应资金机会OT-PM-19-004。我们的意见书在
对所有五个任务领域的回应。
英文摘要
Building a participant community for the All of Us Research Program that reflects
the diversity of our country – and keeping them engaged for a decade or more –
requires purposeful precision engagement.
As the program has built an infrastructure to enroll participants, collect data, curate information, and facilitate physical
measurements and biospecimen collection (PM&B), HCM has been a vital partner since the beginning. We have built
a robust engagement infrastructure to reach, educate, and motivate individuals from communities that have been
historically underrepresented in research (UBR) to participate in the program.
Our engagement approach is grounded in best practices and fueled by the knowledge that impactful engagement
requires you to meet people where they are – not only where they live, work, and play, but also where they are
along their engagement journey. This journey begins with awareness, moves towards enrollment, and nutures ongoing
participation in the All of Us Research Program. To enable sustained, impactful engagement with potential participants,
we have built relationships with key influencers based upon trust, transparency, and bidirectional communication – the
same core values central to the All of Us Research Program.
What we have accomplished. Deep relationships across key communities have been leveraged and community-engaged
approaches used to design, develop, and deliver tools and experiences for multiple audiences. Activities
and results have been tracked to inform the iteration process to improve efficiencies. Impact and scale have been
achieved through partnerships with national organizations with the infrastructure to localize the program. Through
our trusted partnerships, we have brought the All of Us Research Program to neighborhoods, college campuses,
churches, professional conferences, festivals, and other venues where potential participants live, work, and play.
HCM has built, nurtured, and engaged a national network of 1,214 organizations. Our
relationships with these organizations resulted in 902 of them undertaking at least one learning
activity about All of Us. We created the opportunities, tools, and trainings that resulted in 412 of
these organizations taking the next steps to engage with their community in at least one activity,
which is a 46.7 percent activation rate.
Where we are going. Over the next five years, this infrastructure will be expanded to increase awareness of
All of Us, motivate individuals to enroll, engage with participants to retain them over a decade or more, and
nurture an ecosystem of researchers hungry to use the data. The individual components of the engagement
infrastructure will be housed in the new Engagement Innovation Network (Network) and fueled by a new
Engagement Incubator (EI). The EI will provide a community engagement structure that employs community-based
and participatory-engagement approaches to develop experiences for multiple audiences that can be
delivered in a variety of settings, which are replicable and scalable. Best practices will enable efficiency and
impact. Program data and metrics will be used to develop and optimize our strategy over time, and activities
will be aligned to keep pace with key milestones.
HCM is comprised of the nation’s leading experts in community, provider, multicultural, and digital engagement, as well
as experiential learning. We have expanded our team to meet the challenges of this next phase of engagement work
and have brought on new team members including: Brightline Interactive and Notiontheory to expand our ability to
develop a range of digital experiences on a variety of platforms; as well as the National Minority Quality Forum (NMQF)
to bring a critical convening ability and reach into the minority research community.
The impact of our activities to date, as well as our vision for engagement over the next five years, will put the program
on a path to reach its ambitious goals, while remaining true to its core values and enable research that will improve
health outcomes for individuals and communities that have been historically underrepresented in research.
HCM is pleased to submit this proposal in response to the funding opportunity OT-PM-19-004. Our submission is in
response to all five task areas.
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HCM Strategists proposal for: All of Us Research Program Engagement and Retention Innovators (OT2)
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批准号:9903859
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项目类别:
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财政年份:2019
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负责人:Ronnie TEPP
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海外基金