HCM Strategists proposal for: All of Us Research Program Engagement and Retention Innovators (OT2)

为我们所有人的研究计划建立一个参与者社区，以反映 我们国家的多样性--并让他们保持十年或更长时间的参与-- 需要有目的的精确交战。 由于该计划已经建立了一个基础设施来登记参与者、收集数据、管理信息并促进物理 在测量和生物样品收集(PM&B)方面，HCM从一开始就是一个重要的合作伙伴。我们已经建造了 强大的参与度基础设施，可接触、教育和激励来自以下社区的个人 历史上在研究方面的代表性不足(UBR)参与该计划。 我们的参与方法以最佳实践为基础，并基于以下知识：有效的参与 要求您在他们所在的地方与他们见面-不仅在他们生活、工作和娱乐的地方，而且在他们所在的地方 沿着他们的订婚之旅。这一旅程从意识开始，向注册迈进，并不断滋养 参与我们所有人的研究计划。为了能够与潜在参与者进行持续、有效的互动， 我们在信任、透明度和双向沟通的基础上与关键有影响力的人建立了关系- 同样的核心价值观是我们所有人研究计划的核心。 我们所取得的成就。在关键社区之间建立了深厚的关系，并与社区接触 用于为多个受众设计、开发和交付工具和体验的方法。活动 并对结果进行跟踪，以告知迭代过程以提高效率。影响和规模一直是 通过与具有本地化计划基础设施的国家组织建立伙伴关系来实现这一目标。穿过 我们值得信赖的伙伴关系，我们已经将我们所有人的研究计划带到了社区、大学校园、 教堂、专业会议、节日和其他潜在参与者生活、工作和娱乐的场所。 人权理事会建立、培育和参与了一个由1214个组织组成的全国网络。我们的 与这些组织的关系导致其中902人至少进行了一次学习 关于我们所有人的活动。我们创造了机会、工具和培训，实现了412 这些组织采取下一步行动，在至少一项活动中与其社区接触， 这是46.7%的激活率。 我们要去的地方。在接下来的五年里，这个基础设施将得到扩展，以提高人们对 我们所有人，鼓励个人注册，与参与者互动，以留住他们十年或更长时间，以及 培育一个渴望使用数据的研究人员生态系统。项目的各个组成部分 基础设施将安装在新的项目创新网络(网络)中，并由新的 订婚孵化器(EI)。EI将提供一个社区参与结构，该结构以社区为基础 和参与式参与方法，为多个受众开发体验，可以 提供各种可复制和可扩展的设置。最佳实践将实现效率和 冲击力。随着时间的推移，我们将使用计划数据和指标来制定和优化我们的战略和活动 将与关键里程碑保持一致。 HCM由社区、提供商、多元文化和数字参与方面的国家领先专家组成 作为体验式学习。我们已经扩大了我们的团队，以应对下一阶段接触工作的挑战 并引入了新的团队成员，包括：BrightLine Interactive和NotionThey，以扩展我们的能力 在各种平台上开发一系列数字体验；以及全国少数民族素质论坛(NMQF) 为少数群体研究社区带来关键的召集能力和影响。 到目前为止，我们活动的影响，以及我们对未来五年参与的愿景，将使该计划 在实现其雄心勃勃的目标的道路上，同时忠于其核心价值观并使研究能够得到改进 研究中历来被低估的个人和社区的健康结果。 HCM很高兴地提交这项提案，以回应OT-PM-19-004的供资机会。我们的意见书在 对所有五个任务领域作出回应。

Building a participant community for the All of Us Research Program that reflects the diversity of our country – and keeping them engaged for a decade or more – requires purposeful precision engagement. As the program has built an infrastructure to enroll participants, collect data, curate information, and facilitate physical measurements and biospecimen collection (PM&B), HCM has been a vital partner since the beginning. We have built a robust engagement infrastructure to reach, educate, and motivate individuals from communities that have been historically underrepresented in research (UBR) to participate in the program. Our engagement approach is grounded in best practices and fueled by the knowledge that impactful engagement requires you to meet people where they are – not only where they live, work, and play, but also where they are along their engagement journey. This journey begins with awareness, moves towards enrollment, and nutures ongoing participation in the All of Us Research Program. To enable sustained, impactful engagement with potential participants, we have built relationships with key influencers based upon trust, transparency, and bidirectional communication – the same core values central to the All of Us Research Program. What we have accomplished. Deep relationships across key communities have been leveraged and community-engaged approaches used to design, develop, and deliver tools and experiences for multiple audiences. Activities and results have been tracked to inform the iteration process to improve efficiencies. Impact and scale have been achieved through partnerships with national organizations with the infrastructure to localize the program. Through our trusted partnerships, we have brought the All of Us Research Program to neighborhoods, college campuses, churches, professional conferences, festivals, and other venues where potential participants live, work, and play. HCM has built, nurtured, and engaged a national network of 1,214 organizations. Our relationships with these organizations resulted in 902 of them undertaking at least one learning activity about All of Us. We created the opportunities, tools, and trainings that resulted in 412 of these organizations taking the next steps to engage with their community in at least one activity, which is a 46.7 percent activation rate. Where we are going. Over the next five years, this infrastructure will be expanded to increase awareness of All of Us, motivate individuals to enroll, engage with participants to retain them over a decade or more, and nurture an ecosystem of researchers hungry to use the data. The individual components of the engagement infrastructure will be housed in the new Engagement Innovation Network (Network) and fueled by a new Engagement Incubator (EI). The EI will provide a community engagement structure that employs community-based and participatory-engagement approaches to develop experiences for multiple audiences that can be delivered in a variety of settings, which are replicable and scalable. Best practices will enable efficiency and impact. Program data and metrics will be used to develop and optimize our strategy over time, and activities will be aligned to keep pace with key milestones. HCM is comprised of the nation’s leading experts in community, provider, multicultural, and digital engagement, as well as experiential learning. We have expanded our team to meet the challenges of this next phase of engagement work and have brought on new team members including: Brightline Interactive and Notiontheory to expand our ability to develop a range of digital experiences on a variety of platforms; as well as the National Minority Quality Forum (NMQF) to bring a critical convening ability and reach into the minority research community. The impact of our activities to date, as well as our vision for engagement over the next five years, will put the program on a path to reach its ambitious goals, while remaining true to its core values and enable research that will improve health outcomes for individuals and communities that have been historically underrepresented in research. HCM is pleased to submit this proposal in response to the funding opportunity OT-PM-19-004. Our submission is in response to all five task areas.