MEMORI Corps: A novel activity-based companion care program to benefit community-living persons with dementia, their families, and senior volunteers

项目摘要/摘要 痴呆症是一个高成本、高负担的公共卫生挑战。这些包括对喘息和缓解的需要 家庭、行为管理、监督和对痴呆症患者(PWD)有意义的活动。 家庭照顾者(CG)提供了大部分所需的护理，但人口趋势预测 这些CG的可获得性--预示着一场迫在眉睫的危机。不断变化的CG人口结构(例如，更年轻 照顾者，在工作时照顾多个人)也将导致供应短缺。先前 事实证明，心理社会和技能培养干预是改善结果的重要护理策略，但 照顾者学习和实施的时间也很密集。此外，这些干预措施通常负担不起 拥有喘息机会的家庭CG--这几乎是普遍的需求。因此，支持家庭的新方法 痴呆症患者的生活是迫切需要的。 这是一项随机对照试验(NIH第三阶段)，以评估 通过有组织的日常互动(MEMERI)兵团进行有意义的参与，这是一种基于活动的新型活动 社区痴呆症患者(PWD)及其家属的居家陪伴护理模式 由经过培训和监督的高级志愿者提供的家庭照顾者(CG)与增强的等待名单控制。目标是 该方案的目的是解决痴呆症家庭照顾者未得到满足的喘息护理需求，为患者提供 痴呆症有意义的循证活动规划，以及提供健康益处，有意义 为高级志愿者提供生产性参与和同伴支持机会。核心干预组成部分 源自定制活动计划®、体验团®和Mind At Home® 包括：(1)对残疾人士的兴趣和保留能力作出详细的家居初步评估；(2) 基于兴趣和能力的个性化活动计划；(3)志愿者培训 沟通和简化战略以及活动方案计划的使用；(4)通过 志愿者在家中进行为期12周(每周8小时)的残障活动；(5)家庭照顾者活动方面的教育 利用喘息机会的计划和方法；以及(6)来自熟练的多学科志愿者的支持 临床团队。PWD/CG结果将在BL、6周和12周进行评估(PWD/CG参与持续12周 几周)。志愿者成果将在6个月和12个月时进行评估(志愿者参与持续12个月)。 这一示范计划可以作为以社区为基础的长期护理的重要新进展 通过老年人的公民参与，解决未得到满足的以患者和家庭为中心的需求的残疾人发展计划。

PROJECT SUMMARY/ABSTRACT Dementia is a high cost, high burden public health challenge. These include needs for respite and relief for the family, behavior management, supervision, and meaningful activities for the person with dementia (PWD). Family caregivers (CG) provide most of the care required, yet demographic trends project a steep decline in the availability of such CGs—signaling a looming crisis. A changing CG demographic (e.g. younger caregivers, caring for multiple persons while working) will also contribute to shortages in availability. Previously proven psychosocial and skill-building interventions are important care strategies to improve outcomes, but are also time intensive for caregivers to learn and implement. Also, these interventions do not typically afford family CGs with respite opportunities—a nearly universal need. Thus, new approaches to supporting families living with dementia are urgently needed. This is a randomized controlled trial (NIH Stage III) to evaluate the feasibility and efficacy of Making Engagement Meaningful through Organized Routine Interaction (MEMORI) Corps, a novel activity-based companion care model delivered in the home to community-living persons with dementia (PWD) and their family caregivers (CG) by trained and supervised senior volunteers vs. Augmented Waitlist Control. The goal of the program is to address unmet respite care needs for dementia family caregivers, provide persons with dementia meaningful evidence-based activity programming, as well as provide health benefits, meaningful productive engagement, and peer support opportunities for senior volunteers. Core intervention components are derived and synthesized from Tailored Activities Program® , Experience Corps® and MIND at Home® and include: (1) detailed initial home-based assessment of interests and preserved abilities of PWD; (2) individualized activity program plans based on interests and abilities; (3) training of volunteers in communication and simplification strategies and use of activity program plans; (4) delivery of activity plans by volunteers to PWD over 12 weeks (8 hours/week) in their homes; (5) family caregiver education on activity plans and ways to utilize respite opportunities; and (6) support of volunteers from a skilled multidisciplinary clinical team. PWD/CG outcomes will be assessed at BL, 6-, and 12-weeks (PWD/CG participation lasts 12 weeks). Volunteer outcomes will be assessed at 6- and 12-months (Volunteer participation lasts 12 months). This model program could serve as an important new advancement for community-based long term care for PWD that addresses unmet patient- and family-centered needs through civic engagement of seniors.