MEMORI Corps: A novel activity-based companion care program to benefit community-living persons with dementia, their families, and senior volunteers

MEMORI Corps：一项新颖的基于活动的陪伴护理计划，旨在造福社区生活的痴呆症患者、他们的家人和老年志愿者

• 批准号: 10434037
• 负责人: Quincy Miles Samus
• 金额: $ 70.14万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-30 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10434037
• 关键词: 2 arm randomized control trial; Academy; Address; Alzheimer' s Disease; Behavior; Behavioral Symptoms; Caregivers; Caring; Child; Chronic; Clinical; Cognition; Communication; Communities; Companions; Coupled; Dementia; Effectiveness; Evidence based intervention; Family; Family Caregiver; Financial Hardship; Future; Goals; Health; Health Benefit; Home; Hour; Intensive Care; Intervention; Learning; Learning Skill; Long-Term Care; Mental Depression; Modeling; Nursing Homes; Outcome; Patients; Persons; Physical Function; Positioning Attribute; Problem behavior; Productivity; Public Health; Quality of life; Randomized; Randomized, Controlled Trials; Reporting; Resources; Risk; Services; Signal Transduction; Single-Blind Study; Social isolation; Structure; Supervision; Techniques; Testing; Time; Training; United States National Institutes of Health; Wages; Waiting Lists; Work; acceptability and feasibility; care coordination; caregiver education; caregiving; community living; cost; dementia care; depressive symptoms; design; efficacy evaluation; elementary school; emotional distress; evidence base; experience; family caregiving; family support; functional decline; functional disability; improved; improved outcome; informal caregiver; interest; intergenerational; medical complication; multidisciplinary; neuropsychiatric symptom; novel; novel strategies; peer support; preservation; primary endpoint; programs; psychologic; psychosocial; randomized trial; respite care; skills; social; social engagement; social model; stakeholder perspectives; trend; volunteer

PROJECT SUMMARY/ABSTRACT Dementia is a high cost, high burden public health challenge. These include needs for respite and relief for the family, behavior management, supervision, and meaningful activities for the person with dementia (PWD). Family caregivers (CG) provide most of the care required, yet demographic trends project a steep decline in the availability of such CGs—signaling a looming crisis. A changing CG demographic (e.g. younger caregivers, caring for multiple persons while working) will also contribute to shortages in availability. Previously proven psychosocial and skill-building interventions are important care strategies to improve outcomes, but are also time intensive for caregivers to learn and implement. Also, these interventions do not typically afford family CGs with respite opportunities—a nearly universal need. Thus, new approaches to supporting families living with dementia are urgently needed. This is a randomized controlled trial (NIH Stage III) to evaluate the feasibility and efficacy of Making Engagement Meaningful through Organized Routine Interaction (MEMORI) Corps, a novel activity-based companion care model delivered in the home to community-living persons with dementia (PWD) and their family caregivers (CG) by trained and supervised senior volunteers vs. Augmented Waitlist Control. The goal of the program is to address unmet respite care needs for dementia family caregivers, provide persons with dementia meaningful evidence-based activity programming, as well as provide health benefits, meaningful productive engagement, and peer support opportunities for senior volunteers. Core intervention components are derived and synthesized from Tailored Activities Program® , Experience Corps® and MIND at Home® and include: (1) detailed initial home-based assessment of interests and preserved abilities of PWD; (2) individualized activity program plans based on interests and abilities; (3) training of volunteers in communication and simplification strategies and use of activity program plans; (4) delivery of activity plans by volunteers to PWD over 12 weeks (8 hours/week) in their homes; (5) family caregiver education on activity plans and ways to utilize respite opportunities; and (6) support of volunteers from a skilled multidisciplinary clinical team. PWD/CG outcomes will be assessed at BL, 6-, and 12-weeks (PWD/CG participation lasts 12 weeks). Volunteer outcomes will be assessed at 6- and 12-months (Volunteer participation lasts 12 months). This model program could serve as an important new advancement for community-based long term care for PWD that addresses unmet patient- and family-centered needs through civic engagement of seniors.

项目总结/摘要 痴呆症是一项高成本、高负担的公共卫生挑战。这些需求包括需要暂时缓解和救济 家庭，行为管理，监督和有意义的活动的人与痴呆症（PWD）。 家庭照顾者（CG）提供了大部分所需的护理，但人口趋势预测， 这类CG的可用性--预示着一场迫在眉睫的危机。不断变化的CG人口统计（例如， 照顾者，在工作时照顾多个人）也将导致可用性短缺。先前 经证实的心理社会和技能建设干预措施是改善结果的重要护理战略，但 护理人员学习和实施也需要大量时间。此外，这些干预措施通常不能提供 有喘息机会的家庭CG-几乎是普遍的需求。因此，支持家庭的新办法 痴呆症患者的生活是迫切需要的。 这是一项随机对照试验（NIH第三阶段），以评估制造的可行性和有效性 通过有组织的日常互动（MEMORI）军团，一种新颖的基于活动的有意义的参与 在家中向社区生活的痴呆症患者（PWD）提供的陪伴护理模式及其 家庭照顾者（CG）由受过训练和监督的高级志愿者与增强等待名单控制。目标 该计划的目的是解决痴呆症家庭护理人员未得到满足的喘息护理需求， 痴呆症有意义的循证活动规划，以及提供健康福利，有意义的 为资深志愿者提供富有成效的参与和同伴支持机会。核心干预构成部分 源自和综合定制活动计划®，体验团®和MIND在家® 包括：（1）就残疾人士的兴趣及能力是否得以保留，进行详细的初步家居评估;（2） 基于兴趣和能力的个性化活动计划;（3）培训志愿者， 沟通和简化战略以及活动计划的使用;（4）通过以下方式交付活动计划： 志愿者在家中接受超过12周（8小时/周）的残疾人护理;（5）家庭护理人员的活动教育 利用喘息机会的计划和方法;以及（6）来自熟练的多学科志愿者的支持 临床团队将在BL、6周和12周时评估PWD/CG结局（PWD/CG参与持续12周 周）。志愿者的结果将在6个月和12个月时进行评估（志愿者参与持续12个月）。 这一模式计划可以作为一个重要的新的进步，以社区为基础的长期护理， 通过老年人的公民参与来解决未满足的以病人和家庭为中心的需求。